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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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For example i was reading about what they do in germany is put give you hyperthermia treatment which involves bringing your body up to 42 degrees over a number of hours and killing the bacteria. this is done twice over the 2 weeks. then she gets iv treatment the other days to bring back up the innune system. from what i believe and heard it is a very sucessfull treatment but unfortunately is not available over here.
I think that if for Lyme disease rather than cfs but stuff like that interests ,e
anyone know what it is?
I’m bored and just interested in doing some research?
Anyone know any?
This doesn't really workforce's the majority of patients, alas.For example i was reading about what they do in germany is put give you hyperthermia treatment which involves bringing your body up to 42 degrees over a number of hours and killing the bacteria. this is done twice over the 2 weeks. then she gets iv treatment the other days to bring back up the innune system. from what i believe and heard it is a very sucessfull treatment but unfortunately is not available over here.
I think that if for Lyme disease rather than cfs but stuff like that interests ,e
I'm becoming more interested in Dr Klimas again. She said that in her mouse models she was able to reboot the immune system. She says she is doing human studies now. She says Gulf war and ME present the same, although the messaging in the body in Gulf war is unregulated, and in ME down regulated.Probably the custom treatment Dr Klimas did where she removed T-cells, treated them with IL2, and reinfused them creating a temporary remission. I don't have a source for this other than what Dr Chia told me
Rituximab = ~$150k / year
Harvoni = ~$60k / year
Here is her bio at the Institute of Neuroimmune Medicine at Nova Southeastern University. At the bottom of the page there's button to link to her publications, and another to link to her current research. There's a lot.Does anyone have more info about this???