HopingSince88
Senior Member
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- Maine
when you look up vipdx.com on whois it shows that it is registered to Network Solutions (a major provider of domains). Maybe VIPdx forgot to pay the bill for their renewal?
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
CDC replication study delayed in order to prepare a press release?!
- Thread starter awol
- Start date
Ecoclimber
Senior Member
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Nope: Expiration Date: 2010-06-20
Cort
Phoenix Rising Founder
- Messages
- 7,390
Its from Kurt - right here on the Forums.
HopingSince88
Senior Member
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- 335
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- Maine
hmmm. curiouser and curiouser.
Cort
Phoenix Rising Founder
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- 7,390
XAND Forums are certainly a possibility but that will wait, at least on my part, until things are better differentiated; ie we have a good handle on has XM RV and who does not and how much of a role it plays. If it turns out to be 'the' or a major factor in a number of diseases XAND Forums would, I would think, make sense.
This is an old study and not a replication study it appears. It could be the CDC's attempt to try and put another negative study out there or maybe they did find something. Given their track record it hasn't been in the best interest of patients.
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vipdx.com is back up. Does anyone see any changes?
bullybeef
Senior Member
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- North West, England, UK
What I heard was, the powers that be weren't worried about gay deaths. It was only until heterosexual sufferers started dying after contracting HIV via blood transfusions. How disgraceful is that?!
It also took 6 years until the HIV/AIDS campaigns to be shown on TV.
It also took 6 years until the HIV/AIDS campaigns to be shown on TV.
FernRhizome
Senior Member
- Messages
- 412
This was just posted by Impish as a separate thread & went out over google. I wonder if it is related to the government's announcement at all? ~Fern
HomeTeleconferencesTH0037X
XMRV—Chronic Fatigue Syndrome and the Blood Supply
Date: Friday, June 11, 2010 12:00 Noon CT
Credits: 1 CME/CMLE
MOC: PC, MK, PBL
Louis M. Katz, MD
Executive Vice President of Medical Affairs, Mississippi Valley Regional Blood Center, Davenport, Iowa
Public health officials are investigating the potential threat to the nation’s blood supply posed by xenotropic murine leukemia virus-related virus (XMRV) – a retrovirus that some researchers believe may be responsible for chronic fatigue syndrome. This is a potential concern because, theoretically, the virus can be transmitted through transfusions as are other retroviruses such as HIV and HTLV.
There is currently no FDA-licensed blood donor screening test and standards for diagnosis for XMRV infection. Currently, some blood collection agencies are considering the possibility of deferring donors with a history of chronic fatigue syndrome. Efforts are underway by the FDA and CDC to find effective tests for and determine the prevalence of XMRV.
In this Teleconference, Dr. Katz, a specialist in infectious diseases and a prominent figure in national blood banking organizations, will provide in-depth background about the virus and its taxonomic relationships, bring you up to date on XMRV research initiatives, and clarify the issues surrounding the virus in transfusion medicine.
Participants are encouraged to ask questions and engage with Dr. Katz.
Louis M. Katz, MD has served as President of the Board of Directors of America’s Blood Centers, the national organization of independent, community-based blood centers that supply half of the blood components transfused in the United States.
Dr. Katz was recently interviewed for The Wall Street Journal Article "New Threats to U.S. Blood Supply."
Following the conclusion of this program, participants will be able to:
Identify the taxonomic relationships of XMRV
Recognize the disease associations that are being proposed for XMRV
Justify the emerging interest in XMRV in transfusion medicine
Evaluate current research initiatives
Who should attend?
Practicing Pathologists, Residents, Laboratory Managers, Bench Technologists & Technicians, Cytotechnologists, and Phlebotomists
Live Webcast Option!
As an alternative, you may view the slide presentation via the live webcast option – the slides are advanced automatically as you view them online while the audio is still accessed over the telephone.
HomeTeleconferencesTH0037X
XMRV—Chronic Fatigue Syndrome and the Blood Supply
Date: Friday, June 11, 2010 12:00 Noon CT
Credits: 1 CME/CMLE
MOC: PC, MK, PBL
Louis M. Katz, MD
Executive Vice President of Medical Affairs, Mississippi Valley Regional Blood Center, Davenport, Iowa
Public health officials are investigating the potential threat to the nation’s blood supply posed by xenotropic murine leukemia virus-related virus (XMRV) – a retrovirus that some researchers believe may be responsible for chronic fatigue syndrome. This is a potential concern because, theoretically, the virus can be transmitted through transfusions as are other retroviruses such as HIV and HTLV.
There is currently no FDA-licensed blood donor screening test and standards for diagnosis for XMRV infection. Currently, some blood collection agencies are considering the possibility of deferring donors with a history of chronic fatigue syndrome. Efforts are underway by the FDA and CDC to find effective tests for and determine the prevalence of XMRV.
In this Teleconference, Dr. Katz, a specialist in infectious diseases and a prominent figure in national blood banking organizations, will provide in-depth background about the virus and its taxonomic relationships, bring you up to date on XMRV research initiatives, and clarify the issues surrounding the virus in transfusion medicine.
Participants are encouraged to ask questions and engage with Dr. Katz.
Louis M. Katz, MD has served as President of the Board of Directors of America’s Blood Centers, the national organization of independent, community-based blood centers that supply half of the blood components transfused in the United States.
Dr. Katz was recently interviewed for The Wall Street Journal Article "New Threats to U.S. Blood Supply."
Following the conclusion of this program, participants will be able to:
Identify the taxonomic relationships of XMRV
Recognize the disease associations that are being proposed for XMRV
Justify the emerging interest in XMRV in transfusion medicine
Evaluate current research initiatives
Who should attend?
Practicing Pathologists, Residents, Laboratory Managers, Bench Technologists & Technicians, Cytotechnologists, and Phlebotomists
Live Webcast Option!
As an alternative, you may view the slide presentation via the live webcast option – the slides are advanced automatically as you view them online while the audio is still accessed over the telephone.
HopingSince88
Senior Member
- Messages
- 335
- Location
- Maine
Something is amiss. When you go to the page on Diagnostic Tests, it shows a listing of 'sponsored' tests...including computer tests and a car diagnostic test. This has to be Network Solutions putting up a weird page? And it still says it is 'under construction.'
I just visited the page and saw the same thing.....I think it's a good sign that it's "under construction". They may be redoing their site for the new antibody test? If I recall correctly, other sites that are "under construction" are also a hodgepodge of ads and such. And the VIPdx site went "down" the last time they offered a major new test. I've got my fingers crossed, and I also happen to have a whole stack of brown paper lunch bags that are super handy for hyperventilation. 
usedtobeperkytina
Senior Member
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- 1,479
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- Clay, Alabama
baker, very perceptive.
Would CDC come out with test for commercial use before the other study, you know- the big one with multiple labs that Holmberg spoke about, comes out?
I understand independent labs creating their own test, including VIP if they now have another test. But the key will be when FDA approves one, which means it is covered by insurance. I would be surprised if CDC came out with one when blood folks, is it Emory, is doing a big one that is supposed to answer all the questions.
Maybe CDC is feeling the pressure from WPI if they have their own test, that is much better one.
What I want to hear is that Labcorps and Quest are offering it. I am checking every day for that news.
Tina
Would CDC come out with test for commercial use before the other study, you know- the big one with multiple labs that Holmberg spoke about, comes out?
I understand independent labs creating their own test, including VIP if they now have another test. But the key will be when FDA approves one, which means it is covered by insurance. I would be surprised if CDC came out with one when blood folks, is it Emory, is doing a big one that is supposed to answer all the questions.
Maybe CDC is feeling the pressure from WPI if they have their own test, that is much better one.
What I want to hear is that Labcorps and Quest are offering it. I am checking every day for that news.
Tina
Its not back up. Its still the generic DNS provider page. At least thats what I am seeing here... :-/
lululowry
Senior Member
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- 103
- Location
- Athens, Georgia
lol, I love that message Tina! ... unfortunately this happens to me about once a minute these days!
I so relate Bob and Tina. This is getting worse and worse and worse for me by the day or minute - who knows?
:Retro tongue: So it is nice when we can joke about it among those who understand.Bob
Senior Member
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I so relate Bob and Tina. This is getting worse and worse and worse for me by the day or minute - who knows?
erm... sorry... what were we talking about? I can't remember...
lululowry
Senior Member
- Messages
- 103
- Location
- Athens, Georgia
Huh? What?
:tear:
I think it's time for me to become a bag lady...pass it over!
*pacing* (figuratively, of course!)
- Messages
- 41
Hmmm. My ME/CFS doc told me that two new tests were coming out for XMRV in June from from Frank Ruscetti's lab at the NCI. One is a serology test to find antibodies and the second is more sensitive, one that is a quantitative test for XMRV. Wonder if this is why VIP is down?