Persistent pain in neck/ears/throat

[bspg]

For months now I've been suffering from constant pain in my neck/ear/throat area. Its hard to describe because it's not exactly in any one of those places but sort of all over. Its a constant, intense, dull ache.

The pain seems to originate in/under the floor of my mouth and somewhere inside my neck and throat, maybe where the eustachian tubes end? Its deep enough in there that I can't poke it directly with my finger--this is why it's so hard to describe where it's coming from.

Does anyone here experience the same or know what I'm talking about? I'm starting to really worry. NSAIDS don't touch it and stronger pain meds only provide minimal relief. I'm suffering constantly

 

[Eastman]

Could you be having swollen lymph nodes?

 

[bspg]

Its possible. Are there nodes located that deeply? And is it common in ME for lymph node swelling to persist for many months?

 

[Eastman]

Are there nodes located that deeply?

I think so. See this article.

And is it common in ME for lymph node swelling to persist for many months?

Yes. See the reports in this thread.

 

[Seven7]

Do you have white tongue or bumps in the roof of your mouth?
As CFSers we forget that our inmune system is low so we are
Prompt to non Cfs related infections. So you might need to go get it check ( if it has not direct Cfs reason but another infection).

 

[bspg]

Do you have white tongue or bumps in the roof of your mouth?
As CFSers we forget that our inmune system is low so we are
Prompt to non Cfs related infections. So you might need to go get it check ( if it has not direct Cfs reason but another infection).

Yes. I have bumps in the roof of my mouth and soft palate. They never go away.

 

[Seven7]

My Bumps were coasaxie 2 infection but they did not look like that, they were smaller and dry. I think you have ahould be seen by doctor.

 

[bspg]

My Bumps were coasaxie 2 infection but they did not look like that, they were smaller and dry. I think you have ahould be seen by doctor.

I have. They said it was just part of a viral infection and nothing to worry about

 

[Seven7]

I have. They said it was just part of a viral infection and nothing to worry about

so they didn't test you for all the coaxakie (b1 to b9 I think). Do you have acid reflux also?
My bumps went away (and throat issues) with equilibrant supplement (but have to start super low and slowly increase). By the way this also took care of the Parvo virus infection I had (my joints hurt really bad on hands and fingers).
I don't think you can cure the enteroviral infection (cosxaxie b2), but mine keeps in check with 2 pills a day.

 

[andyguitar]

Can take a while for node to shrink. Happens in healthy people to so not just in ME/CFS.