Whoops! Just realized this wasn't on one of my posts...my bad. Apparently the brain fog is strong in me today :/I haven't. Is that a kit you order and then have done somewhere like labcorp?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Whoops! Just realized this wasn't on one of my posts...my bad. Apparently the brain fog is strong in me today :/I haven't. Is that a kit you order and then have done somewhere like labcorp?
My doctor in California got the kit, drew the blood, and sent it to Germany. I had to pay for postage and then €450 for the test, which explained my POTS:Whoops! Just realized this wasn't on one of my posts...my bad. Apparently the brain fog is strong in me today :/
have spells where my body jerks me awake all night with my heart beating insanely fast,
Benfotiamine (titrated up to about 200mg/day) have almost completely reversed the symptom
what brand / dosage of B1 do you take?
This happened to me for a couple of weeks just recently. I had a magnesium blood result returned on Friday and I'm not even in range. I know serum isn't fully accurate but to be completely out of the range must say something. I did notice that when I began transdermal magnesium a few weeks ago the twitches and full body jerks that I had begun having disappeared. I had begun supplementing vitamin D3 5K daily a few weeks previously so I ended up depleting my magnesium. My potassium need hugely increased too and we need magnesium to keep potassium in the cells. When the body twitches and jerks were happening I was also having (unusually for me) several phases of palpitations, especially at night. These have also disappeared since magnesium though I need more - still very edgy. Problem is my adrenals can't take too much magnesium...Ugh, I am so tired of all this.In fact, I had a period with body jerks, or twitching all night (there were nights I could count a hundred of them, very disconcerting), and I later came to view them as a symptom of a severe B12 deficiency. I had all sorts of heart issues, as above--for the B1 deficiency, but prior to that, I had both a-fib and tachychardia relieved by the B-12 for a years or so. The whole thing has been a process of healing multiple deficiencies, new ones revealed after I'd quenched others.