• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Real or false breakthrough?

Learner1

Senior Member
Messages
6,305
Location
Pacific Northwest
I believe this is a discussion of the study you're referring to, including a link to the study, led by Stanford's Jose Montoya.

http://simmaronresearch.com/2017/08...igue-syndrome-mecfs-is-inflammatory-disorder/

Though interesting, it doesn't look like anything actionable is there yet. More stidying needs to be done.

As a patient, I've found more luck in testing to match up my results with the microbiome, metabalomics, antiviral, immune system, and autoimmune antibody work that's been done and working at treatments based on those findings.
 

Alvin2

The good news is patients don't die the bad news..
Messages
3,024
Where is the reference paper and what specific markers do they speak of?
 

Aubry

Senior Member
Messages
189
Cytokines don't always measure severity. Meirleir measures those already for 10 years and I saw many patients with very bad cytokines and still good functional and many patients with low cytokines and very bedridden.