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BBC news is talking about ME this morning at 9.50 if anyone is interested, cheers.
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Get the message that BBC iplayer only works in the UK. But I'm sure it's great as usual?
Yes, 3 hours 53 minutes in.
Hopefully somebody can record the clip and save for posterity w as it's only available for a day on the BBC website.
Good work Jen & @charles shepherd !
@garcia and @JohntheJack have recently recorded the EC talk onto youtube. Thanks guys
If anyone wants to take on the responsibility of automatically recording/ uploading any of the good videos on news websites that they see on PR to YouTube that would be most appreciated by the ME community.
3. Its that time of the year again where everyone going on the bbc has to wear a poppy, or else. I refuse to bow to poppy fascism. They should have been wearing some kind of symbol for ME awareness. WTF has ME got to do with poppies????
I actually started downloading the video but stopped for a few reasons:
1. The interview was so short that it was bordering on taking the piss
2. You generally can't put bbc stuff up on youtube - they have algorithms to recognize their copyright. Sometimes it works, but most of the time it doesn't.
3. Its that time of the year again where everyone going on the bbc has to wear a poppy, or else. I refuse to bow to poppy fascism. They should have been wearing some kind of symbol for ME awareness. WTF has ME got to do with poppies???? (I don't blame the participants, I blame the BBC, it being the state-propaganda arm of this country).
4. All of the above mean not worth saving IMHO.
Thanks for highlighting this BD. The World Service is an excellent area of the BBC and reaches millions of people around the world so those 15 minutes will impact in countries that Jen won’t be able to reach in person. I will definitely catch up on this report soon.Jen had about a 15 minutes interview on the World Service during the early hours a few days ago. Probably it was about 3.15 am I think. They played her recordings of her journey with ME and also her husband's viewpoint of her suffering. She explained how it had all started and how that had affected her, what her career had been and also how it suddenly changed after a virus I think (from memory might be wrong) and left her bed bound. Again they played her recordings of how this made her feel along with many other ME sufferers who I think were bed bound, from all over the world. She had met them through the Internet.
They finished by bringing her story up to the current time where she stressed her advocacy and they finished the interview with her on her condition now. It was excellent and not once did the interviewer who I think was Matthew Bannister, a very experienced BBC executive, go into physcological stuff. I was waiting at the end for SW to pop up and put a counter viewpoint but I am delighted to say that didn't happen. So 15 minutes was devoted to an accurate depiction of ME, very impressive from the BBC for a change.
Pam