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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Naviaux at TACA 2017 - Video

Messages
33
i really really wish he would get some money to do the trials that he wants.

the second autism trial fell apart
the first cfs/me trial didnt happen
the drug company that is going to make suramin will take 2 years to do it

im so glad he joined ron davis's team at the OMF, but their grant got rejected too.

Aargh!
 

neweimear

Senior Member
Messages
215
i really really wish he would get some money to do the trials that he wants.

the second autism trial fell apart
the first cfs/me trial didnt happen
the drug company that is going to make suramin will take 2 years to do it

im so glad he joined ron davis's team at the OMF, but their grant got rejected too.

Aargh!
Well if the company make the drug, that's a start....I know, talk about odds being stacked against us....
 

ljimbo423

Senior Member
Messages
4,705
Location
United States, New Hampshire
I think it was the CDR that was switched on when I first got CFS, when I was 18. I got a viral infection that lasted for weeks as I remember. I recovered to about 80% in the next couple of years, but never fully.

I think the virus might have switched on the CDR making me sick. I cleaned up my junk food diet, stopped drinking and started taking some supplements, which slowly gave me back most of my health. I had a very unhealthy lifestyle. I think the viral infection was just the straw that broke the camels back!

However, I slowly became disabled again with CFS over the next 8-10 years. So it seems the CDR can be turned on like a switch or slowly over a long period of time. They both happened to me and they both left me disabled.


My main focus now is treating the primary ongoing cause of the CDR which I believe is a leaky gut. Easier said then done though!:aghhh: Although I am also treating the CDR with mito. supps, B vits. etc.


Here is a link to the web version of the paper posted above, instead of the PDF if anyone wants to take a look at it. He lists many vitamins, minerals, amino's etc. and explains how they can help reverse the CDR.

Jim