JaimeS
Senior Member
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- Silicon Valley, CA
It's all over but the screaming, lol. Just working on the references section!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I hate to mention it, but would a section on the bits of the most transparent BPS stuff be appropriate?
I.E. the stuff that is a hair away from 'they're all making it up'.
I did not know about these effects, i suspect i will be learning quite a bit from your effortsLoebel M, Grabowski P, Heidecke H, Bauer S, Hanitsch LG, Wittke K, Meisel C, Reinke P, Volk HD, Fluge Ø, Mella O, Scheibenbogen C. (2016 Feb). Antibodies to β adrenergic and muscarinic cholinergic receptors in patients with Chronic Fatigue Syndrome. Brain Behav Immun. 52: 32-9. doi: 10.1016/j.bbi.2015.09.013. Epub 2015 Sep 21. PubMed PMID: 26399744.
Maes, M., Ringel, K., Kubera, M., Anderson, G., Morris, G., Galecki, P., Geffard, M. (2013). In myalgic encephalomyelitis/chronic fatigue syndrome, increased autoimmune activity against 5-HT is associated with immuno-inflammatory pathways and bacterial translocation. Journal of Affective Disorders, 150(2):223-30.
LOL!!!I already found three typos, of course. That's the type of thing you only ever discover after you hit 'send' .
LOL!!!
i think this should be a future studied way of diagnosing ME/CFS, our unique brain malfunctions of which there are a few
Hi @JaimeS, thank you so much for your hard work! Saw this document today and wondered if it's the one this thread was about? (It says 2015 in the title but has 2017 updates)
http://www.meaction.net/wp-content/uploads/2015/05/ME2FCFS-RESEARCH-SUMMARY-Jamie-Seltzer.pdf
Sounds awesome! Is that longer version also available online?Also, there is a much longer version with sections by body system. I hope to be able to turn those sections into articles hosted on #MEAction, and on OMF if that's the sort of content they want there.
Sounds awesome! Is that longer version also available online?
Here is a summary of significant recent ME research:
https://m.box.com/shared_item/https://app.box.com/s/9s4coexxtys5bnz33i6gvqqygu67ex5o
Indeed.
And I would have, but the link says "Anonymous User", so I didn't now who you were.
So I certainly wasn't intentionally not crediting you @thegodofpleasure.
In fact, I subsequently commented:
"Not a chance - I was pointed to it yesterday by another Millions Missing Canada volunteer - so I'm not sure who, other than 'anonymous user' compiles and keeps it updated - but bless their soul."
Thank you @ScottTriGuy
That cloud location isn't where I posted the document I created, it's a copy - but I don't mind.
I post my updates here: https://app.box.com/s/9s4coexxtys5bnz33i6gvqqygu67ex5o and the items highlighted in green are the most recent additions to the list
It would have been nice to have been credited for all the work I put into producing this.
Hi @thegodofpleasure, great document, thank you for your work, very appreciated!I post my updates here: https://app.box.com/s/9s4coexxtys5bnz33i6gvqqygu67ex5o and the items highlighted in green are the most recent additions to the list