waif
Senior Member
- Messages
- 143
hi all
i have ehlers danlos syndrome. my hands have been gloved since 2010, after what i thought was a mechanical injury in my neck/shoulders. the further to the finger tips, the more numb. particularly my median nerve. sometimes i get waves, flares, where i feel needles in my entire body and afterwards my hands are more gloved.
i had giardia for the last 2 years...first gastro wrote it off as ibs-d at first. switched gastros and dx'd, took tindamax, even though my stool sample came back normal, i still get, TMI, bloating and pencil thin stools.
i have had mris, multiple emgs, ncvs, physical therapy. i've been completely preoccupied with the mechanical type injuries and i've barely tested my immune system this entire time.
recently i had some basic immune system tests but i want to test everything that could possibly cause paresthesias, particularly viral/bacterial causes...
here's the tests i've had so far, would igE or igM show if I still had a parasite?
c3c 70 (90-100)
c4c 11 (16-47)
ch50 36 (31-60)
RA negative
ANA negative
igA 10-2017 188.00 81.00 463.00
igM 10-2017 174.00 48.00 271.00
igG 10-2017 1076.00 694.00 1618.00
i'm open to suggestions for ANY TESTS. doctors tend to blame my neuropathy on eds.
thanks in advance, please excuse my brain fog
i have ehlers danlos syndrome. my hands have been gloved since 2010, after what i thought was a mechanical injury in my neck/shoulders. the further to the finger tips, the more numb. particularly my median nerve. sometimes i get waves, flares, where i feel needles in my entire body and afterwards my hands are more gloved.
i had giardia for the last 2 years...first gastro wrote it off as ibs-d at first. switched gastros and dx'd, took tindamax, even though my stool sample came back normal, i still get, TMI, bloating and pencil thin stools.
i have had mris, multiple emgs, ncvs, physical therapy. i've been completely preoccupied with the mechanical type injuries and i've barely tested my immune system this entire time.
recently i had some basic immune system tests but i want to test everything that could possibly cause paresthesias, particularly viral/bacterial causes...
here's the tests i've had so far, would igE or igM show if I still had a parasite?
c3c 70 (90-100)
c4c 11 (16-47)
ch50 36 (31-60)
RA negative
ANA negative
igA 10-2017 188.00 81.00 463.00
igM 10-2017 174.00 48.00 271.00
igG 10-2017 1076.00 694.00 1618.00
i'm open to suggestions for ANY TESTS. doctors tend to blame my neuropathy on eds.
thanks in advance, please excuse my brain fog