candie,
Speaking as a mother of child of the same age with ME/CFS and as a patient myself, I'm begging you to find a way -- as difficult as it may be -- to get your son under the treatment of an ME/CFS expert. Dr Enlander is a good one you've already seen, so that might be the best path. Ask Dr E if he will continue to do phone consults after he's seen your son again. If so, you could have phone appts all year and only have to go in once.
Doctors cannot continue to treat a patient they have not seen in a year, so you have to find a way to get to a specialist at least once a year. All our best ME/CFS specialists are very, very, very busy so you will not find one that will come to your son. You won't even find many (any?) GPs in the US who do housecalls. Unfair maybe, but that's reality.
Not getting appropriate treatment at this stage in your son's illness could leave him severely impaired for life. Ask around PR and you'll find many people in that situation.
A young, previously healthy young man in the first few years of the illness has a
much better chance than most of achieving full functionality
if he gets aggressive treatment promptly. Leave it another couple of years and his chance for recovery drops severely. You really shouldn't squander this opportunity.
I know it is incredibly difficult to travel to a doctor in your son's condition, but it will be ten thousand times
more difficult for him to live the rest of his life in his current condition. Better some extra suffering now than a lifetime of the same suffering and worse.
We traveled 6 hrs (each way) by car to see our specialist. In the earliest days we were wrapped in blankets, noise-cancelling headphones on, eyes closed, laying down in the back of the van. We used a wheelchair for moving to and from the car. We stayed in a hotel and crashed on the beds except for the time we were in the docs office. It was a very hard trip, but well worth it because we both got much better.
My daughter is fully functional, although she still has to take a number of meds and supps. She graduated from college, got engaged, and is currently in graduate school. She would not have been able to do that if we hadn't gotten her aggressive treatment relatively early. At the time we started seeing the specialist she was just getting worse and worse with no sign of recovery.
It was very hard to make the trips to see the specialist, I won't deny that. It was also well worth the effort and trouble to see our daughter get her life back. I'd do the same, and more, again in a flash to prevent her losing her future to this illness.