Wow, that was quite a story! The fact that it took them so long to figure it out, with both parents being physicians, is very telling of the limited knowledge and point of view of individual practitioners. It the Parents thought it was PANS or PANDAS, why didn’t they bring their daughter to an expert sooner?
The article presents PANS/PANDAS as having gotten a permanent black eye by a vocal group of neurologists who disagreed, and, oh, by the way, they had financial ties to a pharmaceutical company that stood to lose money if treatment approaches changed.
Interesting parallels of infection, followed by unrelenting symptoms, possible autoimmunity, and response to IVIG and Rituxan. I wonder if if Research into PANS/PANDAS and ME/CFS could yeild reciprocal benefits?
I’m glad this poor girl is back to normal. Hope relapse is not part of PANS.