mellster
Marco
- Messages
- 805
- Location
- San Francisco
Were you ultimately diagnosed with ME/CFS or another condition(s)? Was shortness of breath your main issue? You said you returned to normal after five years so you suffered with something for a long time and was curious if you or your doctors every figured out what it was? Did you have MCAS or mold exposure?
It wasn't the main issue, also it wasn't shortness of breath exactly, more like intense airhunger (my breathing was actually slowed down I believe). I was diagnosed with CFS (not ME), FM, PVFS and such but nobody really figured it out. Chances are good though that it was dormant and an infection (mono/EBV suspected) triggered it. I didn't have MCAS and don't know about mold, the bay area has quite a large variety of fungi and allergens in general, I had some food intolerances and chronic GI symptoms, but I don't believe those to be the root causes. I had mild POTS as well.
Did you ever fail a PFT/spirometry test which showed impaired breathing (like in my case?) They have ruled out asthma or any obstructive airway disease (in my case) and thus far it appears to be a restrictive airway disease but I need further testing which will hopefully happen in August. Also severe dysautonomia where not enough blood going to my lungs especially when I stand. I will be trying the nebulized gluatathione and liposomal glut, too, in future for lungs and mold detox.
I failed the spiro test barely, so they went with light asthma. I don't think I ever had an athlete's lung, but I am now running half marathons once in a while in around 2 hours. I do believe all my problems were due to some chronic infection/imbalance which likely wreaked havoc in the gut and then the rest of the body and impaired the immune system, it also likely infected the lymph system. I suspect bacteria at this point but don't have ultimate proof. I had extensive viral, and some bacterial and fungi tests. I had high IGG antibodies to EBV and mildly elevated CPN/MPN back then, otherwise nothing out of the ordinary.
Sadly I cannot eat yogurt or anything fermented b/c of my MCAS and histamine issues so I guess this one is out for me. Thanks anyway!
Interestingly I have seen yoghurt in the no-problem category for histamine disorders on some sites, so I am not sure. Also histamine content is so much depending on the food freshness, the sources and the process, so it is difficult to pin down. There was an injectable version of GCMAF though but I think it's not available anymore. I think you cannot do much wrong with the glutathione, so good luck with it. I have also been doing much better in general since embarking on a low-carb diet, not super strict but strict enough. I do biotech research and trade and I do believe that the evidence against sugar (and too many non-sugar carbs) is now overwhelming. I also fast intermittently (16 hours by skipping breakfast) and it helps enormously wrt reducing overall inflammatory symptoms. cheers