Mary
Moderator Resource
- Messages
- 17,377
- Location
- Southern California
I received the e-mail below and accompanying document from the Mayo Clinic a day or 2 ago. I looked at it rather quickly, they have made some positive changes but it still has some glaring inaccuracies, the worst being their continuing reliance on GET and CBT, based on the Cochrane Review, and also a strange analogy comparing PEM to being allergic to something! I haven't had the energy to look at it in depth yet.
I know I am out of my depth as regards the Cochrane Review. I've seen it mentioned several times here but I'm not up on its flaws (though I gather they are many) or anything else about it (I don't really know what the Cochrane Review actually is) nor how to rebut its use by the Mayo Clinic.
So I'd appreciate input for a reply to Mayo. My energy is limited so I'm requesting that replies be kept brief and to the point - I don't want to wade through discussions or debates or opinions, etc. - just the facts, ma'am! (as Joe Friday would say). (e.g., the Cochrane Database of Systematic Reviews re Exercise Therapy for Chronic Fatigue Syndrome is fatally flawed because _______________________, or however this could be better worded)
And anything else anyone thinks is pertinent, I'd appreciate.
I have some things I have to get done in the next couple of days so I probably won't be able to devote any real time to this until next week, though I will check in. So if I don't reply right way, don't worry, I will.
e-mail:
I know I am out of my depth as regards the Cochrane Review. I've seen it mentioned several times here but I'm not up on its flaws (though I gather they are many) or anything else about it (I don't really know what the Cochrane Review actually is) nor how to rebut its use by the Mayo Clinic.
So I'd appreciate input for a reply to Mayo. My energy is limited so I'm requesting that replies be kept brief and to the point - I don't want to wade through discussions or debates or opinions, etc. - just the facts, ma'am! (as Joe Friday would say). (e.g., the Cochrane Database of Systematic Reviews re Exercise Therapy for Chronic Fatigue Syndrome is fatally flawed because _______________________, or however this could be better worded)
And anything else anyone thinks is pertinent, I'd appreciate.
I have some things I have to get done in the next couple of days so I probably won't be able to devote any real time to this until next week, though I will check in. So if I don't reply right way, don't worry, I will.
e-mail:
Each story on MayoClinic.org is updated every three years. I’ve attached the Word document that contains the latest revisions to our online article about chronic fatigue syndrome, complete with the bibliography that shows the sources cited for each paragraph. This text is in the process of being published online, but I don’t know exactly when that will occur.
I worked closely with one of Mayo’s experts on this topic, to determine the best wording for each section. I made several changes specific to points raised in your letter. However, we still believe that most evidence indicates that cognitive behavioral therapy and graded exercise are the best treatment options available at this time for people with chronic fatigue syndrome.