Esther12
Senior Member
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It looked like there were a couple of posts from CFS patients in the comments section, and that this led to Healy recognising some of the problems with PACE.
I pulled out the CFS bits I saw from the blogs, and the quotes relate to the blogs linked to under the quotes.
https://davidhealy.org/honey-i-shrunk-the-shrinks/
https://davidhealy.org/whats-going-on-here/
https://davidhealy.org/from-the-grassy-knoll/
https://davidhealy.org/grassy-knoll-or-slippery-slope/
https://davidhealy.org/the-junkies-take-over-the-asylum/
I pulled out the CFS bits I saw from the blogs, and the quotes relate to the blogs linked to under the quotes.
https://davidhealy.org/honey-i-shrunk-the-shrinks/
Who are SMC? They are linked to Sense about Science. Simon can probably tell you more. My take is the original idea was reasonable – scientists like him were under attack from what might loosely called activists. He probably had much less hostility to cope with than I have had defending ECT. But the idea was to ensure that proper science got a hearing.
https://davidhealy.org/whats-going-on-here/
SMC began in 2002 in part to contain negative media coverage of GM Foods which seemed bad for business in UK PLC. One of the other factors cited early on was the rough time certain academics such as Simon Wessely were getting when they put forward views about Chronic Fatigue Syndrome (CFS). SMC was and is closely linked to Sense about Science, which began at the same time. They had key founders in common.
Their commitment to CFS has been pretty constant too. As one of the comments on What’s going on Here mentions, SMC have recently co-ordinated comments on the PACE study of CFS. This is a British study that has generated more interest in the US than the UK, in part because the authors have resolutely refused to part with the data and because there has been outcome switching worthy of Study 329.
https://davidhealy.org/from-the-grassy-knoll/
https://davidhealy.org/grassy-knoll-or-slippery-slope/
https://davidhealy.org/the-junkies-take-over-the-asylum/