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Fall Asleep from fatigue wake up thirsty ?

gettinbetter

Senior Member
Messages
278
Location
San Francisco Bay Area
I will be amazed if this happens to others
I get very sleepy and go to sleep for a nap I wake up a little while later very thirsty with my heart pounding and a strong desire to urinate.

This thirst occurs even if I was well hydrated before I went to sleep.
 
Messages
1,478
possibly orthostatic intolerance?

towards the end of the day (about 4pm onward) I feel more thirsty and tired. I find that if I put my feet up fully reclined for 20 minutes or so, the tiredness feeling sometimes subsides. Sometimes I'm actually tired. There seems to be a correlation for me between how long I've been stood or sat in one place. I'm mild\moderate but find that periods of relative inactivity does make this worse. I try and alternate activities (gentle walking\pottering vs cognitive stuff) during the day.
 

Wonko

Senior Member
Messages
1,467
Location
The other side.
That is a thought but it happens at very inconvenient times and places
I did not think it was a blood sugar problem but maybe
Thirsty even after drinking, even drinking excessive amounts and still thirsty, sudden sleepiness, even falling asleep, waking up thirsty with an urgent need to urinate, even if it's only 20 minutes since this was done, screams possible blood glucose issues at me, and should do to most doctors. Given the ease and cheapness of doing so, a simple finger prick test, repeated a few times, at different times, seems like a good way to rule in/out diabetes/pre-diabetes as a contributory factor.

BTW as diabetes should have been tested for before an ME/CFS diagnosis was made........

A sudden change in blood glucose can lead to waking up panicked, as can adrenalin or cortisol spikes (which could be caused by a sudden drop in BG), but as BG is cheap and easy to test for at home, and cortisol or adrenal testing is much more expensive......

Or it could be something completely different, but probably a good idea to rule out the common stuff first, if it hasn't already been excluded.

BTW I am not medically trained, but I have decades of experience at being ill ;)
 
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ryan31337

Senior Member
Messages
664
Location
South East, England
Thirsty even after drinking, even drinking excessive amounts and still thirsty, sudden sleepiness, even falling asleep, waking up thirsty with an urgent need to urinate, even if it's only 20 minutes since this was done, screams possible blood glucose issues at me, and should do to most doctors. Given the ease and cheapness of doing so a simple finger prick test, repeated a few times, at different times, seems like a good way to rule in/out/ diabetes/pre-diabetes as a contributory factor.
....
A sudden change in blood glucose can lead to waking up panicked, as can adrenalin or cortisol spikes (which could be caused by a sudden drop in BG), but as BG is cheap and easy to test for at home, and cortisol or adrenal testing is much more expensive......

Experienced all of the above and agree with sentiments. Be aware though that a simple fasting blood test won't necessarily rule out glycemic control issues - they will probably satisfy a clueless GP but a good endocrinologist will know there's a lot more to it. Proper testing is very involved.

In my case I was experiencing significant reactive hypoglycemia, probably due to rapid gastric emptying (POTS linked). If there's any suggestion of orthostatic intolerance I'd go down this road and hopefully you'll find the OI specialists will be aware of the complications.
 

msf

Senior Member
Messages
3,650
KDM explains this in one of his videos. There is an alteration in ADH (anti-diuretic hormone), or its precursor, CRH (I´m not sure about the acronym for this one). From what I´ve worked out, using my own experience and what I´ve read, all the symptoms you list are just a stress response, most likely to increased levels of LPS in the blood after an alteration in gut permeability. Since I have adopted the FODMAP diet and undergone gut treatment (and found the right dose of trazodone), I get these symptoms far less frequently; I generally only get them now if I do something stupid like getting electrotherapy (I´ve forgotten the correct name) for physio.
 

Wonko

Senior Member
Messages
1,467
Location
The other side.
@ryan31337

Yep - I had reactive hypoglycemia for years before I was diagnosed with type 2, during which time my doctor told me several times I definitely did not have diabetes. Not sure about now but at the time reactive hypoglycemia was not a recognised condition in the UK, neither was pre-diabetes according to my GP.

Another possible cause of the symptoms in my experience is a bad reaction to an SSRI (or possibly other meds) but good luck with getting a doctor to acknowledge that one, and I still think getting your BG levels checked, normal levels, levels after eating, levels an hour after eating, levels 2 hours after eating, morning (fasting) levels and immediately after symptoms (if you can't manage/remember to during) would be a good idea - I have no idea what units US meters are calibrated to but in the UK a non diabetic should not exceed 7 mmol at any time - higher than this and you're likely pre-diabetic - higher than 10 mmol and you're diabetic - most of the time levels should be between 4 and 6.5 mmol.

Obviously these levels are dependant on circumstances, a fasting level of 6.5 after a morning workout session, whilst still being within range, would indicate a potential issue.
 
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ryan31337

Senior Member
Messages
664
Location
South East, England
Yep - I had reactive hypoglycemia for years before I was diagnosed with type 2, during which time my doctor told me several times I definitely did not have diabetes. Not sure about now but at the time reactive hypoglycemia was not a recognised condition in the UK, neither was pre-diabetes according to my GP.

Yeah, my experience with a run of the mill Endo was a refusal to acknowledge it, he just wrote "symptoms of hypoglycemia" in letters and in a frank conversation with me said its 'self-correcting' and not an issue. This was despite having a number of objective measurements showing how sick I was post-prandial (ECG, blood pressure, sleep centre MSLT etc.).

I guess the text books say if you haven't had stomach surgery or anything significant like that there should be no concern that compromised GI motility might be causing an issue.

Then I saw an Endo who understood the complications of OI/POTS/Hypermobility, and well, you can probably guess the rest :)

Ryan
 

gregh286

Senior Member
Messages
976
Location
Londonderry, Northern Ireland.
KDM explains this in one of his videos. There is an alteration in ADH (anti-diuretic hormone), or its precursor, CRH (I´m not sure about the acronym for this one). From what I´ve worked out, using my own experience and what I´ve read, all the symptoms you list are just a stress response, most likely to increased levels of LPS in the blood after an alteration in gut permeability. Since I have adopted the FODMAP diet and undergone gut treatment (and found the right dose of trazodone), I get these symptoms far less frequently; I generally only get them now if I do something stupid like getting electrotherapy (I´ve forgotten the correct name) for physio.

used to get this pretty often.
brutal thirst and peeing like a racehorse. was like body couldnt hold onto it.
ADH alteration.
Blood sugar was always rock solid.