Countrygirl
Senior Member
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- UK
I do hope this project is about to snowball
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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She said "funded to the tune of" ... I wonder if there were other indirect costs that she may be considering?A couple of factual errors on the PACE study costing £8m and the appeal going as far as the Ombudsman but otherwise excellent.
Bloody hell, Go Sarah Myhill
Go Sarah Myhill
She is clearly a girl after your own heart @Molly98 .
You didn't write her script, by any chance did you? It just sounds.........familiar.
I rather think she relishes the challenge!Dr Myhill 30 establishment 0 love it!
ha ha, give me her energy and I would be camping outside parliament and banging on doors until we got an inquiry. I might still be there in my 90's given how much they care about ME or disabled people in general though.
I had a look on her map and the South West seems particularly bad, I don't think we have any adopted MPs, is that because our MPs are mainly Tory and therefore supportive of govs disability cuts to PIP and ESA and general mistreatment of disabled people etc, or are we terrible advocates down here in the south West @Countrygirl @Jan @hellytheelephant @Invisible Woman @trishrhymes.
I think south of Bristol the only 2 Labour MPs are Ben Bradshaw in Exeter and Luke Pollard in Plymouth the rest is a sea of blue.
Your MP has been quite good haven't they Helly much to your surprise, do you think they would be up for adoption?
The trouble is that I don't think Myhill has been sufficiently rigorous in some of her own claims about CFS and how to treat it. She's really not the right person to lead criticism of PACE imo. (Not watched this video yet).