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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Ampligen is approved for severe ME. How many severe patients can survive a trip to Argentina, I wonder?But those who wish to take Ampligen can now go to Argentina and get it there without trouble (if they have enough money) whereas it is difficult to come by in the United States and totally unavailable in the EU.
P.S. As for Ampligen's effectiveness, I am also rather sceptical. As @dannybex states, if it works, why don't they simply produce a reliable study?
108 seconds would be a big difference for some. And expense shouldn't be a factor in approving it. Merely safety and efficacy.And there's a good reason it wasn't approved the last time around. Their 2012 study showed after 40 weeks of the drug, it improved exercise tolerance by only 108 seconds. That's not even 2 minutes. For a very expensive drug.
108 seconds would be a big difference for some. And expense shouldn't be a factor in approving it. Merely safety and efficacy.
stock down 10%.....nobody buying this news....