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Writer Tanya Marlow who has ME/CFS has written an article for Premier Christianity for carers and people in contact with the chronically ill with specific reference to ME/CFS.
https://www.premierchristianity.com...those-with-chronic-illness-and-5-ways-to-help
https://www.premierchristianity.com...those-with-chronic-illness-and-5-ways-to-help
What not to say to those with chronic illness (and 5 ways to help)
By: Tanya Marlow | 1st August 2017
How can Christians best serve those with Chronic Illnesses such as ME? Tanya Marlow explains
As someone who has had a chronic illness for 21 years, I've heard my fair share of inappropriate and insensitive advice and comments, including from well-meaning Christians. The truth is, we’ve all said the wrong thing at some point to those who are suffering from invisible illnesses. Here’s five questions to avoid and five ways to help Christians with ME and other invisible illnesses:
5-10%. Most improve somewhat with rest, but sadly 25% deteriorate (according to Dr Charles Shepherd, ME Association).
Though rare, it’s possible to die from ME. Autopsies of severe patients reveal physical damage: dorsal root ganglionitis, multi-organ failure, heart disease.
Mild ME looks like working full-time, but using all spare time to sleep. Very severe ME looks like lying in a darkened room in constant, agonising pain; unable to move or speak; unable to hear whispered speech for more than a few minutes before your brain shuts down; tube-fed because you're too weak to swallow or chew. It's a colourless, silent, decades-long nightmare, often ending only in death....
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