JohnM
Senior Member
- Messages
- 117
- Location
- West Yorkshire
Just by way of a quick intro ..
As most on PR will have noted, NICE have undertaken a surveillance review of the guidelines as applied to our disease. Following on from the IiME consultation response to the review, I noted the following:
"Going forward then any harm coming to patients by these guidelines and from any decision not to update them must be seen to be caused by the NICE Board and SMT and accountability must be taken by those members." (p5)
This coupled with some comments on other threads asking whether or not guidelines for other health conditions were as appalling as our own. I decided to have a look at the full guidelines for MS (CG186 - Multiple sclerosis, Management of multiple sclerosis in primary and secondary care, last updated Oct 2014).
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I found the following disclaimer statements within the CG186 document:
and
When I commented on another thread that UK healthcare is 'byzantine', little did I know. So in light of this, are NICE by extension, able to invoke this same disclaimer? A horrifying thought if so, given all the implications that would entail.
Just hoping that this is an over-reaction on my part, not wanting to add any undue worries, and seeing things that aren't there.
Note:
The National Guideline Centre (NGC) is a multi-disciplinary health services research team funded by the National Institute for Health and Care Excellence (NICE). We produce evidence based clinical practice guidelines on behalf of NICE. Our guidelines aim to improve the quality of patient care within the NHS in England and Wales.
Wishing everyone improved health and every happiness. John
As most on PR will have noted, NICE have undertaken a surveillance review of the guidelines as applied to our disease. Following on from the IiME consultation response to the review, I noted the following:
"Going forward then any harm coming to patients by these guidelines and from any decision not to update them must be seen to be caused by the NICE Board and SMT and accountability must be taken by those members." (p5)
This coupled with some comments on other threads asking whether or not guidelines for other health conditions were as appalling as our own. I decided to have a look at the full guidelines for MS (CG186 - Multiple sclerosis, Management of multiple sclerosis in primary and secondary care, last updated Oct 2014).
--------------------------------------------------------------------------------------------------------------------------------------------
I found the following disclaimer statements within the CG186 document:
"Healthcare professionals are expected to take NICE clinical guidelines fully into account when
exercising their clinical judgement. However, the guidance does not override the responsibility of
healthcare professionals to make decisions appropriate to the circumstances of each patient, in
consultation with the patient and/or their guardian or carer." (p3)
and
"Health care providers need to use clinical judgement, knowledge and expertise when deciding
whether it is appropriate to apply guidelines. The recommendations cited here are a guide and may
not be appropriate for use in all situations. The decision to adopt any of the recommendations cited
here must be made by practitioners in light of individual patient circumstances, the wishes of the
patient, clinical expertise and resources.
The National Clinical Guideline Centre disclaims any responsibility for damages arising out of the use
or non-use of this guideline and the literature used in support of this guideline." (p35)
When I commented on another thread that UK healthcare is 'byzantine', little did I know. So in light of this, are NICE by extension, able to invoke this same disclaimer? A horrifying thought if so, given all the implications that would entail.
Just hoping that this is an over-reaction on my part, not wanting to add any undue worries, and seeing things that aren't there.
Note:
The National Guideline Centre (NGC) is a multi-disciplinary health services research team funded by the National Institute for Health and Care Excellence (NICE). We produce evidence based clinical practice guidelines on behalf of NICE. Our guidelines aim to improve the quality of patient care within the NHS in England and Wales.
Wishing everyone improved health and every happiness. John