- Messages
- 30
- Location
- Suffolk, UK
Hi all
Not sure if this is the best forum to post this in, but it's worth a shot. I'd appreciate anyone's thoughts.
About once a week I get what feels like a cold, except it never really turns into a cold. I dont get the usual runny nose etc but I get post nasal drip, I sneeze more (but not much, compared to someone with a normal cold). These symptoms last a few days, I can sometimes get headache, facial pain and sometimes feel deeply tired, more than my usual manageable ME tired. I also just feel a bit rubbish generally, sometimes walking around feels like I'm walking on a trampoline. I've put this down the inflammation. Sometimes I'll have leg and back ache, much like you get when you have the flu.
After I've had these symptoms in the head for a few days, they inevitably move to my digestive system where I'll get loose bowls (plus horrible smell, sorry for the detail). This to me seems that whatever virus was in my head has simply moved on down to my stomach and on from there. During the head symptoms, I do feel stuff draining down my throat so this kind of makes sense. It's a real shame stomach acid doesnt kill whatever it is.
When my digestive system gets upset, my mood will often change and my anxiety will shoot up. Seeing as the anxiety is one of the more nasty symptoms to experience, I have been focusing lately on addressing that, using some of the advice from here on the forums by user Hip.
After a couple of days, the digestive symptoms will pass and I'll feel back to normal for a few days only, then it will often kick off again. I used to work in an office, and had a theory that because I have ME I was just picking up every bug going around. So I took a job where I could work from home, and more or less isolate myself to test the theory. My theory was wrong. I still get this same issue week in week out no matter what I do - it's as if whatever it is, exists in me permanently and just keeps getting a foothold. I've tried lots of things, especially around supplements and eating right. Nasal rinses, vicks cold spray. One of the odd symptoms I've noticed is that after a bowel movement, my anxiety will often come down dramatically. It's as if whatever was in there was poisoning me in someway.
So, what I'm trying to solve really is the problem of why I keep getting this recurrent cold like virus, for if I can solve this or at least get on top of it the other symptoms may subside.
Has anyone else experienced anything similar? anyone got anything I could try? the Doctors are at a loss. If I could solve this, or get the frequency of occurrence right down, life would be so much better as this has a huge impact.
Not sure if this is the best forum to post this in, but it's worth a shot. I'd appreciate anyone's thoughts.
About once a week I get what feels like a cold, except it never really turns into a cold. I dont get the usual runny nose etc but I get post nasal drip, I sneeze more (but not much, compared to someone with a normal cold). These symptoms last a few days, I can sometimes get headache, facial pain and sometimes feel deeply tired, more than my usual manageable ME tired. I also just feel a bit rubbish generally, sometimes walking around feels like I'm walking on a trampoline. I've put this down the inflammation. Sometimes I'll have leg and back ache, much like you get when you have the flu.
After I've had these symptoms in the head for a few days, they inevitably move to my digestive system where I'll get loose bowls (plus horrible smell, sorry for the detail). This to me seems that whatever virus was in my head has simply moved on down to my stomach and on from there. During the head symptoms, I do feel stuff draining down my throat so this kind of makes sense. It's a real shame stomach acid doesnt kill whatever it is.
When my digestive system gets upset, my mood will often change and my anxiety will shoot up. Seeing as the anxiety is one of the more nasty symptoms to experience, I have been focusing lately on addressing that, using some of the advice from here on the forums by user Hip.
After a couple of days, the digestive symptoms will pass and I'll feel back to normal for a few days only, then it will often kick off again. I used to work in an office, and had a theory that because I have ME I was just picking up every bug going around. So I took a job where I could work from home, and more or less isolate myself to test the theory. My theory was wrong. I still get this same issue week in week out no matter what I do - it's as if whatever it is, exists in me permanently and just keeps getting a foothold. I've tried lots of things, especially around supplements and eating right. Nasal rinses, vicks cold spray. One of the odd symptoms I've noticed is that after a bowel movement, my anxiety will often come down dramatically. It's as if whatever was in there was poisoning me in someway.
So, what I'm trying to solve really is the problem of why I keep getting this recurrent cold like virus, for if I can solve this or at least get on top of it the other symptoms may subside.
Has anyone else experienced anything similar? anyone got anything I could try? the Doctors are at a loss. If I could solve this, or get the frequency of occurrence right down, life would be so much better as this has a huge impact.