Hip
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Carers of children with ME 'accused of fabrication' - BBC News
I'd like to hear the response from NHS England, and what they say about the fact that NHS medical professionals are accusing parents of children with ME/CFS that they are fabricating their child's devastating ME/CFS illness.
A "significant number" of those caring for children with ME have been accused of fabricating their child's illness, a survey has found.
The charity Action for ME said a safeguarding referral to a child protection team had been made against one in five respondents.
Its chief executive said children and their carers faced the "double whammy" of an ME diagnosis and not being believed about their condition.
NHS England has been asked to comment.
Out of 270 respondents to the survey, one in five said they had had a safeguarding referral to a child protection team made against them.
Half of the referrals involved allegations that parents had fabricated or induced their child's illness, although 70% of all the cases referred to social services were dropped within a year.
Sonya Chowdhury, CEO of Action for ME, which is based in Keynsham, near Bristol, said: "Ninety-six per cent of the parents felt that their children's care had been affected by a lack of understanding of ME and nearly 100% of parents were concerned their child had not been believed.
I'd like to hear the response from NHS England, and what they say about the fact that NHS medical professionals are accusing parents of children with ME/CFS that they are fabricating their child's devastating ME/CFS illness.
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