slysaint
Senior Member
- Messages
- 2,125
Watched this last night:
she doesn't go into detail, but does explain how seriously ill she was.
she doesn't go into detail, but does explain how seriously ill she was.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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A new friend of mine asked me just yesterday ‘So what is M.E?’ and I found it so hard to explain- I just told him it’s a real struggle with fatigue, and doing little things feels like doing really big things and how I was in a wheelchair for years and had a stairlift put in my house and couldn’t walk, talk, or even watch tele for years….. but then it’s like ‘oh so you’re better now then?’ And it’s like…. Yea I am SO much better than I was…. But man how I feel day to day is naaaat ok!!
But having said that, I think that what I have to do is to somehow learn to be happy with a day to day life at home, just pottering around the house. A day to day life of just making lunches and dinners for myself and watching tele series’ and then somehow being able to think of anything else that I can do on top of that as a bonus."