Hi everyone,
my doctor and I have the strong suspicion that my CFS is caused by Epstein-Barr-Virus because I have elevated EBV-EA titers and I had a pretty good response to Valacyclovir in the first 4 months according to Dr Lerner's treatment protocol.
Sadly, I had to stop because there was a developing kidney problem (GFR down to 65), so now I'm looking for alternative drugs that are active against EBV.
Famciclovir, the 2nd-line treatment option, is expensive and difficult to source in my country.
I found one study that says that Brivudine has good effectiveness against EBV and is also well tolerated:
http://onlinelibrary.wiley.com/doi/10.1111/j.1432-2277.2009.01045.x/full
But I didn't find any studies that used it against CFS. Dr Lerner also doesn't mention it as an alternative. It seems no one has really tried.
Could it be an option? Are there any experiences here in the community?
I look forward to hear your opinions!
my doctor and I have the strong suspicion that my CFS is caused by Epstein-Barr-Virus because I have elevated EBV-EA titers and I had a pretty good response to Valacyclovir in the first 4 months according to Dr Lerner's treatment protocol.
Sadly, I had to stop because there was a developing kidney problem (GFR down to 65), so now I'm looking for alternative drugs that are active against EBV.
Famciclovir, the 2nd-line treatment option, is expensive and difficult to source in my country.
I found one study that says that Brivudine has good effectiveness against EBV and is also well tolerated:
http://onlinelibrary.wiley.com/doi/10.1111/j.1432-2277.2009.01045.x/full
But I didn't find any studies that used it against CFS. Dr Lerner also doesn't mention it as an alternative. It seems no one has really tried.
Could it be an option? Are there any experiences here in the community?
I look forward to hear your opinions!