- Messages
- 18
- Location
- Connecticut
I'm pretty sure I have MCAD/Masto or another histamine type issue. That or mold issues- I just moved from NYC and was there for 3.5 years and miserable for every second of it. The guy who lived above me was crazy-there were HUGE leaks at some point in every room of my apartment.
Before New York I had never had hives in my life. Now it's a constant battle
Of course, I was doing other idiotic things while living in NYC that could have been the trigger for the hives- (taking Advil PM or Benadryl to sleep *every* night for six months. Yay NSAIDS- read the label kids!!)
And getting fillers put into my face.
I.KNOW.
I AM AN IDIOT.
But you don't need to tell me that, I promise I'm well aware...
But still, I keep coming back to either the mold or undiagnosed, lifelong MCAD. Perhaps caused by dysbiosis. My longest running symptoms, from childhood have been chronic UTIs +bladder inflammation (no structural abnormalities found), asthma and allergies (ended up in the ER several times as a kid), fatigue and depression/anxiety/insomnia.
All these fit the MCAD profile.
High School rolled around and I was also diagnosed with Hashi's (an accurate diagnosis I think, I still take my desiccated thyroid every day) and then in college I *really* crashed was diagnosed with Interstitial Cystitis. And then later Lyme, blah blah.
It never ends.
But in late 2012, after regaining a sliver of my health, I decided to move to New York City. In an *old* building. As a (still) immunocompromised person.
And in a lot of ways, I'm now sicker than ever. I'm taking a functional medicine approach and basically just trying to treat myself at this point- I'm so disillusioned with the medical establishment.
But I'm running into a very specific problem:
Every supplement that relaxes my brain and helps my intractable insomnia also closes up my airways.
So I don't end up getting quality sleep either way.
I used to be able to tolerate a wide variety of prescription meds and almost all supplements (as long as my bladder could handle it) but no more.
Here's what I've tried:
L Tryp- terrible, terrible asthma upon waking
Valium- same deal
Melatonin- used to be my old standby but now variously gives me vertigo, asthma and hives. Even in tiny does.
Magnesium doesn't close my lungs but I was using it for a while and after a few weeks it was making me dizzy and anxious.
I know I'm forgetting several others.
Conversely, Quercetin is a GREAT lung opener for me but then I cannot sleep for love or money, even if I've taken it HOURS ago. I'm +/- for one of the COMT genes and MAOA +/+ and CBS +/+ and many many others.
Anyone have any ideas as to what's possibly going on here? And what I might be able to supplement with to keep both my lungs and my brain happy?!
Thanks guys!
(This is my first post so I'm sorry it's so long or if my post protocol is off- go easy)
Before New York I had never had hives in my life. Now it's a constant battle
Of course, I was doing other idiotic things while living in NYC that could have been the trigger for the hives- (taking Advil PM or Benadryl to sleep *every* night for six months. Yay NSAIDS- read the label kids!!)
And getting fillers put into my face.
I.KNOW.
I AM AN IDIOT.
But you don't need to tell me that, I promise I'm well aware...
But still, I keep coming back to either the mold or undiagnosed, lifelong MCAD. Perhaps caused by dysbiosis. My longest running symptoms, from childhood have been chronic UTIs +bladder inflammation (no structural abnormalities found), asthma and allergies (ended up in the ER several times as a kid), fatigue and depression/anxiety/insomnia.
All these fit the MCAD profile.
High School rolled around and I was also diagnosed with Hashi's (an accurate diagnosis I think, I still take my desiccated thyroid every day) and then in college I *really* crashed was diagnosed with Interstitial Cystitis. And then later Lyme, blah blah.
It never ends.
But in late 2012, after regaining a sliver of my health, I decided to move to New York City. In an *old* building. As a (still) immunocompromised person.
And in a lot of ways, I'm now sicker than ever. I'm taking a functional medicine approach and basically just trying to treat myself at this point- I'm so disillusioned with the medical establishment.
But I'm running into a very specific problem:
Every supplement that relaxes my brain and helps my intractable insomnia also closes up my airways.
So I don't end up getting quality sleep either way.
I used to be able to tolerate a wide variety of prescription meds and almost all supplements (as long as my bladder could handle it) but no more.
Here's what I've tried:
L Tryp- terrible, terrible asthma upon waking
Valium- same deal
Melatonin- used to be my old standby but now variously gives me vertigo, asthma and hives. Even in tiny does.
Magnesium doesn't close my lungs but I was using it for a while and after a few weeks it was making me dizzy and anxious.
I know I'm forgetting several others.
Conversely, Quercetin is a GREAT lung opener for me but then I cannot sleep for love or money, even if I've taken it HOURS ago. I'm +/- for one of the COMT genes and MAOA +/+ and CBS +/+ and many many others.
Anyone have any ideas as to what's possibly going on here? And what I might be able to supplement with to keep both my lungs and my brain happy?!
Thanks guys!
(This is my first post so I'm sorry it's so long or if my post protocol is off- go easy)