Rebecca2z
Paradise, Ca
- Messages
- 248
- Location
- Paradise Ca
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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It's not great, but something might turn up. It does have the advantage of being a very cheap way to take a look.I doubt if the resuslts of 23andMe genetics are useful for medical research in diseases. I think it is more complicated.
This is a good example of why anecdotal observations alone are not reliable.I would expect to see MTHFR show up largely in the results - 98% of the results I've seen on this site have this mutation to one degree or another vs. 30-40% in the general population.
Yeah, they've never heard of houses made out of concrete, which is about 95% of the Netherlands Fortunately they don't have any problems with skipping questions.Sent my data! There were some environmental factor questions I really did not know how to answer, though.
I think that ME/CFS can only studied properly if you measure genetics, bloodsamples and MRI etc... before and after exercise. This is the hallmark for this disease. The best way is hospitalization of patiënts for a few days. But this is expensive.
From the talk today somebody asked about diagnosis and she said that it's a question on the questionnaire - who diagnosed you, or something like that.Can anyone answer the following questions about the Klimas gene study?
- What definition are they using for me/cfs?
- What precautions are they taking to protect patient genetic information being sent over the internet?
Thanks BurmA.From the talk today somebody asked about diagnosis and she said that it's a question on the questionnaire - who diagnosed you, or something like that.
I am not sure what the questions are but it's via the questionnaire how they determine patient characteristics.
Edit: I am not sure of any precautions.