I've started to read around on here about POTS & use of heart rate monitors.
I'm not sure whether to get my son tested for POTS (in UK) & wondered what the treatment is & what the benefits might be (I will check out the MEA leaflet).
He's been ill overall for almost 5 years but started to make improvements 16 months ago. I'd say we might be on a plateau possibly at the moment.
Before he started to show improvements he had blackouts & needed to spend a lot of his time horizontal & had freezing lower legs. Since the improvements the blackouts have stopped, he does now shower every 2nd day & can stand to do a little cooking. His temp regulation has improved. He sits up more but his walking is very limited. He's always needed to drink a fair amount of water.
I'm just wondering if he did show up for POTS could treatment for that improve his function a bit more? Especially, physically.
I'm worried though about making him increase his worry about his health. He's 14 this week & in a fairly good place mood wise.
Same goes for heart monitors....
I feel torn between something that might give him a bit more control/options in terms of fine tuning pacing & maybe even giving him some confidence to do very slow walking but also don't want him to become hyper vigiliant.
I feel taking both further could have possible benefits but could also both backfire.
Any thoughts appreciated - thanks!
I'm not sure whether to get my son tested for POTS (in UK) & wondered what the treatment is & what the benefits might be (I will check out the MEA leaflet).
He's been ill overall for almost 5 years but started to make improvements 16 months ago. I'd say we might be on a plateau possibly at the moment.
Before he started to show improvements he had blackouts & needed to spend a lot of his time horizontal & had freezing lower legs. Since the improvements the blackouts have stopped, he does now shower every 2nd day & can stand to do a little cooking. His temp regulation has improved. He sits up more but his walking is very limited. He's always needed to drink a fair amount of water.
I'm just wondering if he did show up for POTS could treatment for that improve his function a bit more? Especially, physically.
I'm worried though about making him increase his worry about his health. He's 14 this week & in a fairly good place mood wise.
Same goes for heart monitors....
I feel torn between something that might give him a bit more control/options in terms of fine tuning pacing & maybe even giving him some confidence to do very slow walking but also don't want him to become hyper vigiliant.
I feel taking both further could have possible benefits but could also both backfire.
Any thoughts appreciated - thanks!