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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Which doctor to see ?

patient.journey

Senior Member
Messages
443
Hi guys , it have been 6 years of illness and it seems that mine is little bit different from a lot of you !
body is changing from inside :

inflammation is more all over the body , pain , fatigue , nerve damage , and now i cant handle antibiotics and other some other kind of treatment white it was fine before , and today after my CT scan i took persistent generalized lymphadenopathy diagnose from my infection disease doctor , telling me i only saw that with few cases of HIV something like 5 % only .. and it was there with me fore 5 years

did any one had persistent generalized lymphadenopathy for years here like me ?!

my all blood tests are normal thankfully , MRI for brain and spinal and the guy who made my CT scan told me its fine and i can take my results by tomorrow and there was nothing except some small lymph in neck , armpit , chest and the groin area and he think its fine as other medical workers :)

MY infection disease doctor set with me today and talked to me as a friend telling me to travel and i should not wait any more , he will help me by ordering tests from here so i can take with me and do others out side ..

Which doctor in Europe is best and in which country , best labs !! please help me friends i just for my visa to Europe and its hard to get another one soon so i have to do it all while am there !

i will be waiting your ideas

regards
 

Hip

Senior Member
Messages
17,857
Which doctor in Europe is best and in which country , best labs !! please help me friends i just for my visa to Europe and its hard to get another one soon so i have to do it all while am there !

That's an easy question to answer, because believe it or not, there really is only one internationally-known ME/CFS doctor to cover the whole of Europe: Dr Kenny De Meirleir (Himmunitas, near Brussels, Belgium).

Whether an ME/CFS doctor might be suitable for your own illness, which may be a little different to ME/CFS, I am not sure. Dr De Meirleir has access to a lots of different test though.
 

patient.journey

Senior Member
Messages
443
That's an easy question to answer, because believe it or not, there really is only one internationally-known ME/CFS doctor to cover the whole of Europe: Dr Kenny De Meirleir (Himmunitas, near Brussels, Belgium).

Whether an ME/CFS doctor might be suitable for your own illness, which may be a little different to ME/CFS, I am not sure. Dr De Meirleir has access to a lots of different test though.

i will give them a call by tomorrow so i can make an appointment