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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Unfortunate because for whatever reason, some have made total or near total recoveries on drugs like Viread
Okay, thanks @Jesse2233 .
For an overview, this sums it up quite well.
https://en.wikipedia.org/wiki/Xenot..._virus-related_virus#Chronic_fatigue_syndrome
Even Judy MIkovits was a co-author on the final paper, entitled: No Association between Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and either Xenotropic Murine Leukemia Virus-Related Virus or Polytropic Murine Leukemia Virus.
http://mbio.asm.org/content/3/5/e00266-12
I tried it for 4 months and noticed zero benefit.Unfortunate because for whatever reason, some have made total or near total recoveries on drugs like Viread
I tried it for 4 months and noticed zero benefit.
No. But keep in mind that I was taking it alongside Epivir, amantadine, Equilibrant, etc. Perhaps if you were completely naive to any treatment of this type and took it you might notice some effect.Any IRIS response?
No. But keep in mind that I was taking it alongside Epivir, amantadine, Equilibrant, etc. Perhaps if you were completely naive to any treatment of this type and took it you might notice some effect.
Yes, sudden onset post echovirus infection.Interesting, that's quite a cocktail. Your onset was due to an enterovirus correct?
Yea I agree XMRV is very likely not the underlying cause
Benefit from ARVs is either due to 1) misdiagnosis of ME/CFS 2) a heretofore undiscovered common retrovirus or 3) some unrelated immunomdoulating property of ARVs
If I had to bet, I'd bet it's 3
Okay, thanks @Jesse2233 .
For an overview, this sums it up quite well.
https://en.wikipedia.org/wiki/Xenot..._virus-related_virus#Chronic_fatigue_syndrome
Even Judy MIkovits was a co-author on the final paper, entitled: No Association between Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and either Xenotropic Murine Leukemia Virus-Related Virus or Polytropic Murine Leukemia Virus.
http://mbio.asm.org/content/3/5/e00266-12
Judy's name was on it, but she was allowed no input to the work or to even be present in the building. She was made certain promises about the continuation of the retroviral work, but promises were broken.
Things are not as they seem.
I have also heard of a number of people doing extremely well on ARVs, although I didn't hear the rumour/fact that Jen B is using them.
I tried it for 4 months and noticed zero benefit.
Yes. He was trialing it on a few patients.Who prescribed Viread--Dr. Chia?
Yes. He was trialing it on a few patients.