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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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"The ME community protested against PACE’s oppressive bad science on 12th May. Guest post by C Hale"

slysaint

Senior Member
Messages
2,125
Excellent.
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Is there a Youtube video of the whole address? (it only does the first 42 seconds)
 

Yogi

Senior Member
Messages
1,132

Esther12

Senior Member
Messages
13,774
Thanks. It is just more powerful having a video of someone speaking than reading their words. Much more difficult to pull off- I struggle to say what I mean after a ton of thought and re-drafting. Great work by Catherine Hale.

I had a slight concern that a bit of the MH vs biological could be interpreted as a bit anti-psych, but it's very hard to talk about PACE stuff concisely.
 

Yogi

Senior Member
Messages
1,132
I can't see those links; maybe because I'm not on twitter(?)

eta: the 42 second long one is on Youtube; so I don't see why they didn't put it all on?
It's okay on laptop. Maybe difficult on tablet/phone.

Direct link.



@L.A. Cooper - Thanks for recording this and to Catherine for her speech. Whenever you recovered it would be great if you or anyone else with it could post on YouTube for permanent record of it. It is also linked on mepedia for pacetrial.

Cheers for MM campaign!!