I have been struggling with chronic fatigue since summer 2015. My GP ran lots of tests and put it down anxiety/mood as I had been attacked a few years before by a family member and I had at the time seen my son go downhill with bullying. I had a lot of stress and by winter 2015 I was bed ridden with stress and fatigue. Since then the stress in my life has got better, my son is well but my health has continued to go downhill. I daily have chronic fatigue, body feels heavy, weak shaky thighs often, woozy head due to heavy fatigued eyes and head. I feel a loss in energy, lack of desire to keep fighting to get this sorted because after almost 2 years trying to get answers I am exhausted by it all.
In early 2016 I was diagnosed subclinical hypothyroid and put on thyroxine, I hoped that would make things better but no this year so far I feel even worse. In November last year I had a full run of blood tests which were all ok, sodium ran a little low at 129 so I had to repeat it and it came up to 138. I was told all the bloods he did were to rule out anything causing fatigue. I had FBC, blood film, B12, Folate, HBA1C, glucose, glandular fever, nuclear antibodies, liver and kidney function, creatine kinase.....He then just said everything was ok but by January my fatigue was worsening, I had just been through a stressful December as I seem to get winter depression which continues into January and February so I rang him and he told me it was likely the depression but then he told me he was worried as my level of fatigue wasn't normal and he wanted to run more tests. I had to have another full blood count, liver, kidneys etc... It showed my white cells were slightly out, the neutrophils were 1.6 (2-7) and Lymphocytes 3.98 (up to 3.65 is normal on the lab range) I repeated it 5 weeks later and neutrophils had increased to 1.8 and lymphocytes had raised to 4.45 so GP referred me to a haemotologist who wants me in 7 weeks to repeat the FBC and he will look at it himself under a microscope to check the white cells himself and then go from there. It has been worrying me is it blood cancer but my GP says it's nothing like that. I won't relax though until the haemotologist has taken a look.
My GP has announced he is leaving next month for family reasons which I fully understand after he explained to my husband why and he apologised leaving so sudden and leaving me without answers. I asked my husband if he would call him, I gave permission to my GP for him to talk to my husband about my health. I just feel overwhelmed and before he leaves I wanted him to speak to the GP i have chosen in the surgery to take over my care, explain to her I need home visits due to my agoraphobia and chronic fatigue and if bloods are needed to do them at my house (basically everything my current GP does) as a change in GP is very upsetting and it's embarrassing to me having to ask a new GP to do home visits. So my husband had a call with him today to discuss this and to see if I can get some kind of diagnosis after so long because my GP has played with the idea of CFS a few times and just left it. He always blames anxiety or mood and arghhh I am only anxious on bad fatigue days, my agoraphobia has only started due to how unwell I feel and I have home visits due to this.
My GP won't diagnosed CFS he just says I have chronic fatigue. My husband said my GP said he thinks it's more depression as that causes all my symptoms like constant fatigue, unrefreshed sleep feeling, feeling I am dragging around a heavy decaying body, brain fog, heavy eyes and head, woozy feeling and like the floor moves as I walk and my GP said yes depression causes all of those things. My husband then put to him that my crashes hit after exertion, so too much housework, a trip out that's over an hour, too much talking etc.... can cause me to crash. Depression surely cannot do that as it's more a post exertional malaise? He said 'CFS is just a diagnosis of exclusion'. Hubby also said I can't stand for long periods or I feel faint, weak, fast heart etc.. but nope all just due to the fatigue.
I have been left with this chronic fatigue that rules my life. Today for example I woke feeling a 10/10 crash day, so exhausted that even walking to the toilet made me anxious as I felt so weak, heavy, awful nausea all day and very woozy like the ground was moving. Awful. That is not depression but my GP seems to just blame everything on 'mood'. I am not a depressed type, anxious yes, I have always had anxiety but depression when I have experienced it is always situational since the attack. I admit I have depression but it's due to this situation because when my fatigue issues began I was doing so well mentally since the attack, I had overcome my agoraphobia and really happy then WHAM the fatigue began and worsened and worsened, that was back in summer 2015.
I just feel confused and now don't know what to think. My GP is leaving and signing me over to another GP which will hopefully lead to some more explanation.
Julie
In early 2016 I was diagnosed subclinical hypothyroid and put on thyroxine, I hoped that would make things better but no this year so far I feel even worse. In November last year I had a full run of blood tests which were all ok, sodium ran a little low at 129 so I had to repeat it and it came up to 138. I was told all the bloods he did were to rule out anything causing fatigue. I had FBC, blood film, B12, Folate, HBA1C, glucose, glandular fever, nuclear antibodies, liver and kidney function, creatine kinase.....He then just said everything was ok but by January my fatigue was worsening, I had just been through a stressful December as I seem to get winter depression which continues into January and February so I rang him and he told me it was likely the depression but then he told me he was worried as my level of fatigue wasn't normal and he wanted to run more tests. I had to have another full blood count, liver, kidneys etc... It showed my white cells were slightly out, the neutrophils were 1.6 (2-7) and Lymphocytes 3.98 (up to 3.65 is normal on the lab range) I repeated it 5 weeks later and neutrophils had increased to 1.8 and lymphocytes had raised to 4.45 so GP referred me to a haemotologist who wants me in 7 weeks to repeat the FBC and he will look at it himself under a microscope to check the white cells himself and then go from there. It has been worrying me is it blood cancer but my GP says it's nothing like that. I won't relax though until the haemotologist has taken a look.
My GP has announced he is leaving next month for family reasons which I fully understand after he explained to my husband why and he apologised leaving so sudden and leaving me without answers. I asked my husband if he would call him, I gave permission to my GP for him to talk to my husband about my health. I just feel overwhelmed and before he leaves I wanted him to speak to the GP i have chosen in the surgery to take over my care, explain to her I need home visits due to my agoraphobia and chronic fatigue and if bloods are needed to do them at my house (basically everything my current GP does) as a change in GP is very upsetting and it's embarrassing to me having to ask a new GP to do home visits. So my husband had a call with him today to discuss this and to see if I can get some kind of diagnosis after so long because my GP has played with the idea of CFS a few times and just left it. He always blames anxiety or mood and arghhh I am only anxious on bad fatigue days, my agoraphobia has only started due to how unwell I feel and I have home visits due to this.
My GP won't diagnosed CFS he just says I have chronic fatigue. My husband said my GP said he thinks it's more depression as that causes all my symptoms like constant fatigue, unrefreshed sleep feeling, feeling I am dragging around a heavy decaying body, brain fog, heavy eyes and head, woozy feeling and like the floor moves as I walk and my GP said yes depression causes all of those things. My husband then put to him that my crashes hit after exertion, so too much housework, a trip out that's over an hour, too much talking etc.... can cause me to crash. Depression surely cannot do that as it's more a post exertional malaise? He said 'CFS is just a diagnosis of exclusion'. Hubby also said I can't stand for long periods or I feel faint, weak, fast heart etc.. but nope all just due to the fatigue.
I have been left with this chronic fatigue that rules my life. Today for example I woke feeling a 10/10 crash day, so exhausted that even walking to the toilet made me anxious as I felt so weak, heavy, awful nausea all day and very woozy like the ground was moving. Awful. That is not depression but my GP seems to just blame everything on 'mood'. I am not a depressed type, anxious yes, I have always had anxiety but depression when I have experienced it is always situational since the attack. I admit I have depression but it's due to this situation because when my fatigue issues began I was doing so well mentally since the attack, I had overcome my agoraphobia and really happy then WHAM the fatigue began and worsened and worsened, that was back in summer 2015.
I just feel confused and now don't know what to think. My GP is leaving and signing me over to another GP which will hopefully lead to some more explanation.
Julie
