Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Can anyone say 'chronic fatigue syndrome' to a stranger without a little shudder going through them? I can't. Its ridiculous!
\Chronic fatigue syndrome is a box we have been put into.It is not real.It has no scientific meaning.I see no reason why we should stay in this box.I simply say Myalgic encephalopathy.If then I am pushed I say a disease of the immune and nervous system.No word of a lie merely a rebranding excercise and relabelling our box
I don't think anyone is obliged to share the details of their medical history with anyone else, ever. (ok, medical settings don't count)