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Had a SKYPE consultation with Dr Paul Cheney last night

Basilico

Florida
Messages
948
Even capsules ordered from the guru's
store ultimately hardened and blackened with spots!

@Stretched , I found a few almost full bottles of Yasko's multivitamin and Organ support from 2 years ago in the back of my supplement cabinet. I thought, might as well take these now...Opened them up and there were indeed blackened and messed up - have never seen this with other old supplements. What the heck is this about?
 

Kati

Patient in training
Messages
5,497
@Stretched , I found a few almost full bottles of Yasko's multivitamin and Organ support from 2 years ago in the back of my supplement cabinet. I thought, might as well take these now...Opened them up and there were indeed blackened and messed up - have never seen this with other old supplements. What the heck is this about?
What's the expiration date on the bottle?
 

Basilico

Florida
Messages
948
NanoVi Technology, nocturnal low dose oxygen.

From what I was reading on the other Cheney thread, Cheney only recommends the nocturnal low dose oxygen for patients who have specific echocardiogram results. There is also some debate on whether this is helpful or not. In any event, this seems like a band-aid to address symptoms rather than an actual cure.

http://forums.phoenixrising.me/inde...se-oxygen-therapy-at-night.50360/#post-832119

As for nanotechnology fixing CFS...I'll believe it when I see it.

This really feels like grasping at straws. Another specialist happy to charge an arm and a leg without concrete treatment options. The only expert I really have confidence in at this point is Ron Davis.
 

Basilico

Florida
Messages
948
What's the expiration date on the bottle?

It was past expiration, don't remember how much (1 year?). Since I am habitually buying supplements and then abandoning them when they don't work, I have lots of old stuff to toss on an ongoing basis. Have never seen this with other expired stuff.
 

caledonia

Senior Member
Could it be that making the sustained effort had a placating effect, i.e. similar to placebo effect, that the trial participants would have had an 'upturn' irrespective of methylation; or substitute another regimen, say Dr, Coimbra's Vit D3 protocol?

I spent a lot of time and expense with both processes, in specific reading 'Dr. Amy's' questionable books and web routines but succeeded in affecting little but abating the focus on symptoms while preoccupied with the process. While symptoms ultimately returned, that is not to say there may have been some health benefits to 'M' and
the Vitamin D3 protocol... .

IMO, methylation is just another fad that got a few people engaged then withered away, like so many other 'cure de jours'. Even capsules ordered from the guru's
store ultimately hardened and blackened with spots! ...But hey, no ticky, no washy; you gotta try... .

I disagree. Here is my take on why methylation supplements may be helpful.

Besides genetics, you also have to consider epigenetics. The epigenetic factors which negatively affect the methylation cycle are mercury and lead. In the case of toxins, the first line of defense is to remove the toxins. The other option is to increase the co-factors of the pathway. The fact that some people got a lot better from methylation proves that you may be able to increase the co-factors enough to compensate for the toxins.

Then there are a lot of complicated variables and factors as to why taking methylation supplements wouldn't work, such as mercury also inhibits many other enzymes and pathways in the body, and fixing one pathway (even though it's a major pathway) may not be sufficient for everyone.

In general, after much research and experimentation, I think a better approach is testing for metals and chelating them out, if present. I suggest only using the Cutler frequent dose chelation protocol as the safest, most effective method.
 

keenly

Senior Member
Messages
814
Location
UK
So what evidence does he have that this works?

The risk IS YOURS.
From what I was reading on the other Cheney thread, Cheney only recommends the nocturnal low dose oxygen for patients who have specific echocardiogram results. There is also some debate on whether this is helpful or not. In any event, this seems like a band-aid to address symptoms rather than an actual cure.

http://forums.phoenixrising.me/inde...se-oxygen-therapy-at-night.50360/#post-832119

As for nanotechnology fixing CFS...I'll believe it when I see it.

This really feels like grasping at straws. Another specialist happy to charge an arm and a leg without concrete treatment options. The only expert I really have confidence in at this point is Ron Davis.


MAY help.

CLOSE THREAD PLEASE MODS.
 

keenly

Senior Member
Messages
814
Location
UK
Yes of course it is. I'm just interested to know of any research that provides any evidence that this may be helpful. I would want to know this about any potential treatment. And if someone as experienced as Cheney is saying that something could help he may well have solid evidence.

Cheney is still looking into it. I actually want this thread closed, I should not have made it. Thought I was helping.

The best bet would be to have your oxygen saturation levels measured.
I am looking into this now. My area actually has a team to do this. Now I have to get referred.

God Bless.
 

Jenny

Senior Member
Messages
1,388
Location
Dorset
Cheney is still looking into it. I actually want this thread closed, I should not have made it. Thought I was helping.

The best bet would be to have your oxygen saturation levels measured.
I am looking into this now. My area actually has a team to do this. Now I have to get referred.

God Bless.

Sounds interesting - let us know what your results are. I'm not sure why you want the thread closed - we just want more details.
 

PatJ

Forum Support Assistant
Messages
5,288
Location
Canada
I received a very quick and professional response from the company that makes the NanoVi. The email contains a statement that the information is confidential so I can't disclose the prices they quoted but I can tell you that the devices are certainly not low cost and I don't think the base model is even close to affordable for the average person (at the moment, maybe prices will drop in the future).

Anyone interested in giving it a try may be able to find a treatment center that uses the technology.
 

Johnskip

Senior Member
Messages
141
Cheney is still looking into it. I actually want this thread closed, I should not have made it. Thought I was helping.

The best bet would be to have your oxygen saturation levels measured.
I am looking into this now. My area actually has a team to do this. Now I have to get referred.

God Bless.
how do you get your oxygen saturation levels tested I know one thing on exertion they can't be normal I'm out of breath easy and it feels oxygen is not getting to my brain properly I'm an athlete trying to get back to exertion
 

keenly

Senior Member
Messages
814
Location
UK
I received a very quick and professional response from the company that makes the NanoVi. The email contains a statement that the information is confidential so I can't disclose the prices they quoted but I can tell you that the devices are certainly not low cost and I don't think the base model is even close to affordable for the average person (at the moment, maybe prices will drop in the future).

Anyone interested in giving it a try may be able to find a treatment center that uses the technology.

I know how much they cost, TOO MUCH!!!!!!!!!!!!!

They MAY be helpful to some, with low dose oxygen.

Just an option. I can not afford one.
 

Hajnalka

Senior Member
Messages
910
Location
Germany
There's an article on Cheney's website with some information: http://cheneyinstitute.com/2017/01/supplydemand-paradigm-used-cfs/
I therefore believe that NanoVi should only be used with nasal oxygen at the same time in CFS patients for a period of time between 4 and 12 minutes on the professional NanoVi model (~$8,500) per day and between 8 and 24 minutes per day on the home NanoVi model (~$5,500).
 
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xrayspex

Senior Member
Messages
1,111
Location
u.s.a.
There's an article on Cheney's website with some information: http://cheneyinstitute.com/2017/01/supplydemand-paradigm-used-cfs/

If you can't/don't want to spend money on this I still think his idea of rebreathing is a good "poor man's" treatment and something we can do for ourselves, or square breathing good too--but will be intrigued to hear how this new thang works out for some of y'all

http://www.prohealth.com/library/showarticle.cfm?libid=8079

Here is how it works:

1) Inhale through your nose for 4 seconds

2) Hold your breath for 7 seconds

3) Exhale through tightly pursed lips for 8 seconds, creating "back pressure" (you should be able to hear the air being forced out of your mouth as you do this.)

(they go onto to talk about ayurvedic and kenyan runners etc)

http://www.prohealth.com/library/showarticle.cfm?libid=8812
 
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Oberon

Senior Member
Messages
214
How many of them exist? Not many. I was doing fine using only hydroxycobalamin, then I added other B vits in the form of the Mixed B vit transdermal sprays and everything collapsed. Now I can not reduce Idebenone to Idebenol.

How many people have been truly transformed by adding folates?

To this day my biggest regret in my life is pursuing Methylation therapy. I made some stupid decisions tried larger doses and took potassium as protocols on this forum recommend and it placed me in a position where I am significantly worse off. I've developed dysphagia, gastroparesis, histamine issues, stiff tingling muscles, food sensitivities, and my activity scale went from an 8 to a 5/6 on the activity scale. Probably other things I'm missing too.

It's easy with CFS to act out of desperation and read a case study or two on the internet and hope it works for you but there are risks. I think the Methylation forum should have a stickied thread of negative experiences so people take more of a proceed with caution approach. It's very easy to be skewed by the vocal opinion of others on the pro side there.