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S. Wessely - Death threats, abuse, smear campaigns - Standing up for Science: 29 March

char47

Senior Member
Messages
151
SW said (from Janet Eastham's twitter feed) "they changed the recovery measure because they realised they had gone too extreme & they would have the problem that nobody would recover"

Talk about revealing yourself, & them, without realising what you just did!

they've always insisted that they made the decision to change the trial protocol before they'd done any analysis of the trial data - with the implication being that they had no idea what the results would have been if analysed in accordance with the original protocol.

That was my thought too.... reeeeaally Simon? is that what they did? because it's precisely what theyve been accused of doing all this time, & they said they didnt. - Their version of events (afaiaa) was that they decided to change the thresholds for other reasons.
-the ''too extreme'' threshold in the original protocol was 85 - which as i understand it is the normative for a healthy working age person - which is presumably why they chose it in the first place - because it's what any normal intelligent person would reasonably interpret "recovered" to mean.
But according to Simon, when they realised no one was going to hit it, & "they would have the problem that nobody would recover", instead of acknowledging the reality of their situation... ie THAT NO BODY HAD RECOVERED FOLLOWING THEIR INTERVENTIONS.... they decided that those results didnt fit in with their reality so they had to change something. So basically they went "eh? we were sure this would work, but it doesnt appear to have done so.... it cant be that our hypothesis is wrong, it cant possibly be that we have to change our beliefs in light of the facts, our version of reality is set in stone, so it must be that we made a mistake in how we planned to interpret the data. We are so certain that people will recover with CBT/GET that what we define as recovered will have to change to support our reality".

and if they want to argue that a score 60 is more normative than 85, then why did they recruit a bunch of healthy people for a trial testing treatments for sick people? Which ever way you look at it it's a load of bollocks.
I know we know that already, but i think old SW slipped up there...., saying, publicly, & for impressive/humourous effect, that they knew nobody was going to hit 85 so they changed it.... why did they know nobody would hit it? because either they recruited people they knew were not ill & were on the 'normal' scale to begin with. Or, they thought a bunch of people would hit it & when they saw that it hadnt worked & no one would recover, they couldnt have that result, it didnt fit with their reality, & therefore they changed the threshold for recovery to worse health than those they recruited in the first place.

I know we all know this, but this guy's hubris will be the down fall of the lot of em if he keeps 'showing off' in this way to his audience in these arenas.
I used to feel infuriated by him being given a platform to spout & be admired....
I'm also now smiling & thinking - yes good, you go on, give him plenty of opportunities for adulation, because he'll start to feel even more untouchable .... 'give em enough rope';)
 

Wolfiness

Activity Level 0
Messages
482
Location
UK
Also -
m58b8nu.jpg

is anyone else hearing Donald Trump saying these words?
 

user9876

Senior Member
Messages
4,556
the ''too extreme'' threshold in the original protocol was 85 - which as i understand it is the normative for a healthy working age person

85 is below normal for a healthy working age person.

17% of the working population fall below 85. 22% are at 85 or less. The median (typical value is 100).

If we take out those people with long term health conditions (i.e. to get healthy working age people) the about 8% of people are under the 85 range with 61% scoring 100, 17% 95, 9% on 90 and 4% are on 85.

So 85 is way below the norm and 85 covers the majority of the healthy working age population.
 

char47

Senior Member
Messages
151
85 is below normal for a healthy working age person.

17% of the working population fall below 85. 22% are at 85 or less. The median (typical value is 100).

If we take out those people with long term health conditions (i.e. to get healthy working age people) the about 8% of people are under the 85 range with 61% scoring 100, 17% 95, 9% on 90 and 4% are on 85.

So 85 is way below the norm and 85 covers the majority of the healthy working age population.

Ah. thanks for that, I stand corrected.
Do you have a source/ref for those figures please? Not that i dont believe them, it makes sense to me, i'd just like to be able to quote them & to do that I'd like to be able to back them up with where i got them.
 

user9876

Senior Member
Messages
4,556
Ah. thanks for that, I stand corrected.
Do you have a source/ref for those figures please? Not that i dont believe them, it makes sense to me, i'd just like to be able to quote them & to do that I'd like to be able to back them up with where i got them.

They are figures I have worked out from the survey that Bowling wrote her paper on. I can't remember if it is the ONS or HSE study but the data is quite similar.
 

Valentijn

Senior Member
Messages
15,786
If they knew they were going to find that none of the treatments worked and they amended their methodology so that they could suppress the original results and instead report a positive effect for their preferred treatments - well, that starts to sound like falsification to me
I think Wessely was trying to imply that SF36 Physical Functioning score of 85 is too stringent. It's completely bullshit of course, and he relies on the ignorance of his audience to get away with it. But he may have been trying to avoid telling an outright lie, and ended up telling a bit too much of the truth in the process.

I cannot believe this will not eventually transition into something legally punitive in due course.
I can believe it. Prosecuting someone for this would be extraordinarily difficult, unless there's a record of them somewhere saying "Let's do some fraud!", more or less. But I can easily see it killing their careers, and I think that's a much better outcome to aim for.

Intent is the core of the issue.
This is why it would be very hard to prove outright fraud. In most crimes, intent is obvious in that someone carried out a physical act which requires intentional actions. It's less clear when the inappropriate action could be due to gross incompetence instead of only intent. But for the purposes of ending their careers, it doesn't matter. They've been doing research for decades, and can't claim that they just need a second chance to learn how to conduct research properly.
 
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Messages
66
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char47

Senior Member
Messages
151
They are figures I have worked out from the survey that Bowling wrote her paper on. I can't remember if it is the ONS or HSE study but the data is quite similar.
thanks. & great job working that out.
Sorry to be dense but what am i searching for then in order to find that report? or even Bowling's Paper? I've never heard of either & the people i would tell those figures to will want to check the facts. No worries just ignore me if it's a hassle.
 

Stewart

Senior Member
Messages
291
thanks. & great job working that out.
Sorry to be dense but what am i searching for then in order to find that report? or even Bowling's Paper? I've never heard of either & the people i would tell those figures to will want to check the facts. No worries just ignore me if it's a hassle.

The Bowling paper that the PACE authors quoted as justification for lowering the SF-36 scores can be found here.

Lots of commentary and analysis of how the PACE team misinterpreted the figures can be found here.
 

user9876

Senior Member
Messages
4,556
thanks. & great job working that out.
Sorry to be dense but what am i searching for then in order to find that report? or even Bowling's Paper? I've never heard of either & the people i would tell those figures to will want to check the facts. No worries just ignore me if it's a hassle.

In the PACE recovery paper they quote a paper analysing a survey published by Bowling:
We changed our original protocol's threshold score for being within a normal range on this measure from a score of ⩾85 to a lower score as that threshold would mean that approximately half the general working age population would fall outside the normal range. The mean (s.d.) scores for a demographically representative English adult population were 86.3 (22.5) for males and 81.8 (25.7) for females (Bowling et al. 1999). We derived a mean (s.d.) score of 84 (24) for the whole sample, giving a normal range of 60 or above for physical function.

The reference for the Bowling paper is

Bowling A, Bond M, Jenkinson C, Lamping DL (1999). Short Form 36 (SF-36) Health Survey Questionnaire: which normative data should be used? Comparisons between the norms provided by the Omnibus Survey in Britain, the Health Survey for England and the Oxford Healthy Life Survey. Journal of Public Health Medicine 21, 255–270 [PubMed]

The bowing work is based on a survey from the office of population and surveys.

Office of Population Censuses and Surveys. Social Survey Division, OPCS Omnibus Survey, November 1992 [computer file]. Colchester, Essex: UK Data Archive [distributor], September 1997. SN: 3660, doi:10.5255/UKDA-SN-3660-1

From this the stats can be worked out. The assumptions they make in the PACE paper is that the results for the SF36 are distributed with a distribution that is parameterised by mean and SD. Which is not the case when you look at the distribution. This means using the median and percentile is more robust. The Bowling paper doesn't give these but they can be calculated from the data which is what I have done.
 

TiredSam

The wise nematode hibernates
Messages
2,677
Location
Germany
It's been pointed out my answer was ambiguous.
Is "ambiguous" a word anyone used? SW probably wishes it was, and as usual thinks that if he says it, everyone will accept it as true. In fact looking through the twitter comments no-one has used the word "ambiguous", although I did spot "nonsense" and "disgraceful". Why can't he just say "It's been pointed out that my answer was disgraceful nonsense" instead of trying to reframe the story as usual?
 

trishrhymes

Senior Member
Messages
2,158
''Before the analysis'' is very different from (or should that be different to...) ''before anyone knew any of the results''. They did not need to do any analysis to see that hardly anyone in any of the groups had reached 85 or more on SF-36 and that there wasn't a significant between group difference.

So even if they were blinded to which group of data was which, it was blindingly obvious the project had failed. All it would have taken was a glance at the figures. Similarly with the walk and fitness tests.
 

Stewart

Senior Member
Messages
291
It's been pointed out my answer was ambiguous.

It's been pointed out that for once my answer wasn't sufficiently ambiguous.

To be clear the change was before the analysis

...because it was blindingly obvious to us that CBT and GET weren't having the desired effects long before we started analysis. But hopefully by offering a 'clarification' on the *timing* of the change I can create the impression that I mispoke when I blurted out the *reason* for the change.

Apols for any confusion

I'm deeply embarrassed that - despite my many years experience in the art of obfuscation - on this occasion I spoke a little too candidly. I will try not to let it happen again.
 
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