Knockknock
Senior Member
- Messages
- 212
Hi RYO,I am not arguing that NIH funding is woefully inadequate or that the NIH has neglected the ME/CFS community. Have you viewed the video webinar presentation by Dr. Avindra Nath? My opinion is that his efforts are genuine.
Are you suggesting that nothing of value can come from this intra mural study? Would you argue that this study shouldn't be conducted? Of course, I wish the NIH devoted $250 million or more to ME/CFS research. But we need more that financial resources. Listen to Dr. Nath's interview. ME/CFS community desperately needs researchers and clinicians that are even interested in studying this disease. You can't force someone to do research in an area where they have no interest.
If I am recruited for this study, I hope to advocate for the ME/CFS community in any way that I can given the opportunity.
I wouldn't doubt that Doctor Nath's interview show real good intentions to help the Me/ CFS comunity.
If its true or just part of the political agenda? We gona know that in a couple years, francis collins sounded very truthfull and meaningfull when he said that Me/cfs was neglected, when he asure to use all fire power and look actions speak laugther than words.
You can say and believe all you want sonim
I, but the actions ia what it reflect the reality.
More doctors more wide knowledge ofcourse we need that
BUT
Reality is that there is plenty of doctors out there with real knowledge, montoya, klimas, irma rey, lipkin and several doctors and researchers with the proper funding will go deep into research, there is alot new technology not aveilable years ago, to detect viruses, genes, mutations, they simply dont donit becouse they are seen thesame pattern, thesame resistance, thesame limited funding.
I mentioned this before, Me/cfs has double or triple if not more, the amount of cases in USA and around the world, neuro immune illnesess are leading the epidemic.
13 -15 million is not even close to the sense of unrgency that an illness like this deserve.
Especially (abandoned)(ignored)been neglected for decades.
Its thesame pattern over and over to much talk, but
little real action, small controled studies.. 50 patients is not enough, not even close.
There is not a single CFS researcher and experianced doctor in that study.
Klimas, montoya and many other doctors are desperate for funding.
They just dont get it from Nih.
You maybe right about him, unfortunanly above him there is much much powerfull forces.
To me they are afraid, concern of expousing whats behind this illness, that ofcourse increasing funding and research will eventually lead to that.
I can not think other wise, notging else make sense to still limiting research, choosing such small budget still.
Show me what they have really done, not what they saying, what they are saying compare to what they have said and what they had done to what they are doing is very similar to NONE
Last edited: