Free full text:http://journals.sagepub.com/doi/pdf/10.1177/1363459315628044
Sympathetic article.
Sympathetic article.
ILLNESS IS WORK: Revisiting the concept of illness careers and recognizing the identity work of patients with ME/CFS
Jan Grue
University of Oslo, Norway
Abstract
The concept of careers has an extensive history in the sociology of health and illness. Among other things, the notion of a career has been used to describe the changing identities of patients diagnosed with mental illness, to identify distinct stages in the progression of various illnesses, and to recognize the cooperative efforts of hospitalized patients. However, the career concept may be reanalyzed as part of an analytical metaphor that makes salient both the agency of people with illnesses and the social structures in which they are enmeshed. This metaphor, ILLNESS IS WORK, can valorize and aid understanding of the identity work and actions of patients with chronic illnesses, particularly illnesses with a low degree of social recognition and medical prestige such as myalgic encephalopathy and chronic fatigue syndrome.
Keywords
chronic illness, disease prestige, identity, illness career, metaphor theory, myalgic encephalopathy and chronic fatigue syndrome