Esther12
Senior Member
- Messages
- 13,774
Seems a bit dodgy that Action for ME were telling charity partners that the meeting had been cancelled when it hgad not.
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
http://www.coventry.gov.uk/download/downloads/id/20150/req00733.pdf
"The Whitehouse Consultancy is currently providing 12 months of political consultancy to Action for M.E. as part of its annual pro-bono scheme.’"
About MAXIMUS
MAXIMUS is one of the Department for Work and Pensions accredited providers of the Work Programme, delivering the scheme in West London and the Thames Valley, Hampshire, the Isle of Wight, and North East Yorkshire and the Humber.
MAXIMUS has considerable experience providing support to help disadvantaged people back into the labour market and has partnered with governments around the world to provide critical health and human service programmes to a diverse range of communities for more than 40 years.
MAXIMUS operates in the UK, US, Canada, Australia, New Zealand and Saudi Arabia. Through its subsidiary Health Management Limited (HML), MAXIMUS is also one of the largest providers of occupational health services in the UK and carries out these services through a dedicated team of highly qualified clinicians.
Media enquiries: Chris Rogers, The Whitehouse Consultancy
020 7793 2536
07720 054189
The current chair is Sir Peter Bottomley MP
Current Officers according to the Minutes of 7 September 2016 are
Chair: Sir Peter Bottomley MP
Co-Chair: Countess of Mar
Kerry McCarthy MP
Julian Sturdy MP
Carol Monaghan MP
Vice-Chair: Mark Tami MP
Secretary: Daniel Zeichner MP
Officers according to the Minutes of 11 May 2016 meeting were:
All Party Parliamentary Group on M.E.
Chair Sir Peter Bottomley MP
Co-Chair Countess of Mar
Vice-Chair Mark Tami MP
Secretary Jacob Rees-Mogg MP
2. Appointment of new officer – Daniel Zeichner as Secretary
Unclear whether Jacob Rees-Mogg MP retains any involvement with the current group.
----------------------------
According to the Minutes of the 11 May 2016 meeting:
Secretariat
Sonya Chowdhury, Action for M.E.
Declan Mullaney, Action for M.E./Whitehouse Consultancy
Dr Charles Shepherd, ME Association
Declan Mullaney
Associate Political Consultant, Whitehouse Consultancy
http://www.publicaffairsnetworking.com/profile/declan-mullaney
He also attended as "Secretariat" at the May 2016 meeting.
Secretariat
Declan Mullaney, Action for M.E./Whitehouse Consultancy
Dr Charles Shepherd, ME Association
In what capacity does he attend these meetings and what is his relationship with AfME?
they need a meeting of Parliamentarians to work this out?
- address the barriers faced by people with M.E. in accessing care and support
- ensure that those delivering social care assessments have access to all the information they need to achieve a good understanding of M.E. and its impact
- identify tangible, realistic and achievable practical steps that will improve outcomes for people with M.E. and their carers.
To be fair to him, he is probably the most left wing in his party, mostly an old fashioned Conservative. He isn't going to be for greater spending, but he is probably more concerned with ethical questions about studies, treatments, etc.Peter bottomley , very right wing isn't he, his wife was health secretary under Thatchers starvation of NHS - is he going to be a radical social care spender on behalf of pwME?
they need a meeting of Parliamentarians to work this out?
1) try telling the NHS/GPs that M.E. is a serious debilitating biological/physical illness
2)what is the point in giving them 'access to the real information' if they ignore it, or if the information they are given is wrong?
3)stop treating pwME with CBT/GET for starters...........
why didn't they want the charities reps there?
@Dx Revision Watch -thank you for your deciphering of yesterday's events. I truly don't know how you managed that.
Also for keeping us updated as events unfolded.
I lost the plot about midnight last night. Can I apologise for that?. Am assuming you didn't see my odd post till this morning...... hope you didn't; you really might have found it just too confusing.