helperofearth123
Senior Member
- Messages
- 202
Hi everyone,
As the title says I'm thinking of donating a kidney to a stranger, just as a good thing to do. I know the risks for healthy people and am willing to accept those but there are a few other potential problems that I am aware of as someone with CFS/ME.
A bit of background
I have had moderate CFS for 6 years, I can currently walk about 30 mins a day and struggle to read large amounts. Mine started originally from a verified lyme infection which was then treated effectively with antibiotics only for CFS to follow some months later.
Problem number 1:
What if I'm still infected with lyme or have other (undetectable) infections that are causing my CFS? Could they be passed on? The doctor say I am not infectious and latest research coming from Norway seems to involve a non-infectious mechanism, but still is there a small risk? Although its better for the recipient to come down CFS than die from lack of a kidney, so this may not be enough of a reason to not go ahead. Still it seems unlikely they would get 'infected' with CFS but there does seem to be some very low risk.
Problem number 2.
What if I need antibiotic treatment or rituximab in the future? Will my body be able to handle future CFS treatments with just 1 kidney?
Any thoughts on this would be appreciated,
Thanks
As the title says I'm thinking of donating a kidney to a stranger, just as a good thing to do. I know the risks for healthy people and am willing to accept those but there are a few other potential problems that I am aware of as someone with CFS/ME.
A bit of background
I have had moderate CFS for 6 years, I can currently walk about 30 mins a day and struggle to read large amounts. Mine started originally from a verified lyme infection which was then treated effectively with antibiotics only for CFS to follow some months later.
Problem number 1:
What if I'm still infected with lyme or have other (undetectable) infections that are causing my CFS? Could they be passed on? The doctor say I am not infectious and latest research coming from Norway seems to involve a non-infectious mechanism, but still is there a small risk? Although its better for the recipient to come down CFS than die from lack of a kidney, so this may not be enough of a reason to not go ahead. Still it seems unlikely they would get 'infected' with CFS but there does seem to be some very low risk.
Problem number 2.
What if I need antibiotic treatment or rituximab in the future? Will my body be able to handle future CFS treatments with just 1 kidney?
Any thoughts on this would be appreciated,
Thanks