Saw this on IiME FB, which linked to the charity's FB page:
https://www.facebook.com/notes/action-cind/pace-trial-an-open-letter-to-the-lancet/675517282550693
CIND stands for Chronic Immunological and Neurological Diseases.
https://www.facebook.com/notes/action-cind/pace-trial-an-open-letter-to-the-lancet/675517282550693
Action CIND said:Dr Richard Horton
The Lancet
125 London Wall
London, EC2Y 5AS, UK
Dear Dr. Horton:
In February, 2011, The Lancet published an article called “Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomized trial.”
Unfortunately, the study received attention around the globe and has had a significant influence on perceptions, treatments and subsequent research. Considerable reviews of the PACE trial paper have raised very serious concerns about the trial and its recommendation of GET and CBT for individuals suffering from this disabling illness.
Several individuals, professionals and patient organizations have written you over the past few months asking that the Lancet retract the paper and support the call for QMUL to release the data for independent review. Most recently on February 10, 2016, over thirty of the world’s experts wrote an open letter to you which can be referenced at http://www.virology.ws/2016/02/10/o....
We at Action CIND, request that you publically acknowledge all the correspondence and take action to address these very legitimate issues and concerns that have been brought to your attention. We are a Canadian organization dedicated to supporting patients with Chronic Immunological and Neurological Diseases and in particular Myalgic Encephalomyelitis which is often referred to as Chronic Fatigue Syndrome in the UK. While the Lancet may be UK based, the impact of this paper has had a global reach. Over 400,000 Canadians and millions of patients worldwide have been negatively impacted.
It is imperative that steps be taken to mitigate any further damage to these individuals. We respectfully request you publicly acknowledge the concerns that have been brought to your attention and begin taking the steps required to remedy this dire situation.
Yours sincerely,
Alison Rae
Action CIND
CIND stands for Chronic Immunological and Neurological Diseases.