soxfan
Senior Member
- Messages
- 995
- Location
- North Carolina
I don't want to talk down Dr. Komaroff because I know he has done a lot of research and this is his passion...BUT I was a patient of his from 2011 till 2012 and I will say he was not a good doctor. I worked very hard to become a patient as he was not accepting any at the time.
I wrote him a letter basically begging to be seen and he did agree. The first appointment he spent about an hour with me. The only tests he did was the standard basic blood testing...ones that I have had many many times. He also did a quick physical exam.
About a week later I received in the mail a summary of his findings which were high titers to HHV-6 and EBV but he said in his opinion they were not active. The Only treatment he offered me was injections of bovine extract daily. I agreed and spent the money on the syringes and extract. Well first off the stuff smelled like rotting dead pigs...it was horrendous and it burned and stung something awful. I only let my husband give me two of them it was so painful. The medication was called Nexavir.
Anyway I let him know it wasn't going work for me. He offered me no other treatment options. I saw him twice more and each visit was FIVE minutes long. He gave me no other testing like for POTS...or any of the other major problem of CFS. He was a terrible doctor for me and I was extremely disappointed in him. I never felt like he cared about my suffering or that I ha did bee sick for 7 years when I saw him.
I hope he continues his research and maybe find a cause or diagnostic test that can help. I honestly just have no respect for him as a doctor as I had a terrible experience with him...
I wrote him a letter basically begging to be seen and he did agree. The first appointment he spent about an hour with me. The only tests he did was the standard basic blood testing...ones that I have had many many times. He also did a quick physical exam.
About a week later I received in the mail a summary of his findings which were high titers to HHV-6 and EBV but he said in his opinion they were not active. The Only treatment he offered me was injections of bovine extract daily. I agreed and spent the money on the syringes and extract. Well first off the stuff smelled like rotting dead pigs...it was horrendous and it burned and stung something awful. I only let my husband give me two of them it was so painful. The medication was called Nexavir.
Anyway I let him know it wasn't going work for me. He offered me no other treatment options. I saw him twice more and each visit was FIVE minutes long. He gave me no other testing like for POTS...or any of the other major problem of CFS. He was a terrible doctor for me and I was extremely disappointed in him. I never felt like he cared about my suffering or that I ha did bee sick for 7 years when I saw him.
I hope he continues his research and maybe find a cause or diagnostic test that can help. I honestly just have no respect for him as a doctor as I had a terrible experience with him...