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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Cort,
Sugggestion: before the May CFSAC meeting, Dr. Anthony Fauci, NIAID Director, should be asked for his position on ME/CFS to be posted online-- here-- so everyone knows where he stands.
What he thought 18 years ago (Newsweek, 9/7/92): "researchers will succeed at isolating unusual viruses in (ME/CFS) patients...most of these viruses will turn out, on close inspection, to be innocent bystanders."
If "innocent bystander" continues to be used to justify no ME/CFS research, Fauci/NIH should be challenged to prove it-- with research. They need safe, effective FDA approved antivirals specifically for XMRV, HHV-6, EBV, enteroviruses, etc. and clinical trials to prove-- one way or the other-- what role infective agents play in ME/CFS.
Gemini
Thanks, Gemini. It's good to know there is at least some awareness in the chain of command there.
I hope there are some people who are more interested in helping patients than covering up the bad things that have been done for so many years.