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A horrific end to a living death RIP

Messages
2,125
This video sums up very well how bad severe ME is ,in this case literally a living death and how the abuse from the NHS and her being sectioned ultimately lead to her death.


God Bless.

Unfortunately it's regarded as 'yesterdays news' but sadly it is as true today as it was then. AND things are getting even worse for PwME:cry::(
 

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
i think about sophia mirza sometimes. it was a story i could never forget.

Same with 19 year old Alison Hunter and her sectioning and death over ME here in Australia years back. I dont know where her full story is now online though there seems to be watered down versions about the place.

Is there a ME rememberance day? I know there is a ME day but is there a rememberance one..if not there should be.
 

SK2018

SK
Messages
239
Location
Asia wide + UK
To suffer from severe ME is in effect an almost living death but to be punished for your suffering is beyond comprehension even over here in communist China ME sufferers are not treated that way and in fact they are given medical care ,and that's saying a lot
Same with 19 year old Alison Hunter and her sectioning and death over ME here in Australia years back. I dont know where her full story is now online though there seems to be watered down versions about the place.

Is there a ME rememberance day? I know there is a ME day but is there a rememberance one..if not there should be.
 
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Jennifer J

Senior Member
Messages
997
Location
Southern California
Zou Xiangyu quote from: http://forums.phoenixrising.me/index.php?threads/so-tired-i-want-a-friend-fighting-together.42970/

In fact, the medical treatment in China is kind of bad, I have been to one of the best hospital and the attitude of the doctor made me annoyed, he asked some questions, a few minutes, and then made a presciption. I have seen many doctors, it seemed that they were as busy as a president and had no time to learn your condition in detail. Maybe because of the quantity of the patients, but I think it's awful. So doctors don't help me at all.

To suffer from severe ME is in effect an almost living death but to be punished for your suffering is beyond comprehension even over here in communist China ME sufferers are not treated that way and in fact they are given medical care ,and that's saying a lot

Off thread topic for a moment, hi @Shawn, reading your above quote made me think of @Zou Xiangyu. I was wondering if you have the energy maybe you could point @Zou Xiangyu in some good directions that may help. Thank you for sharing all you have shared with us. :)

@Zou Xiangyu, I've been thinking of you since you first posted. I hope things are going better and you were able to connect with @Justin_Sohan and hopefully some other people. :hug:
 

SK2018

SK
Messages
239
Location
Asia wide + UK
Zou Xiangyu quote from: http://forums.phoenixrising.me/index.php?threads/so-tired-i-want-a-friend-fighting-together.42970/





Off thread topic for a moment, hi @Shawn, reading your above quote made me think of @Zou Xiangyu. I was wondering if you have the energy maybe you could point @Zou Xiangyu in some good directions that may help. Thank you for sharing all you have shared with us. :)

@Zou Xiangyu, I've been thinking of you since you first posted. I hope things are going better and you were able to connect with @Justin_Sohan and hopefully some other people. :hug:
if you see my thread here http://forums.phoenixrising.me/inde...g-cause-of-my-cfs-anti-nmda-antibodies.47413/ you'll know why I have this opinion ,I found the right doctor at the right specialist center ,I was referring more to the fact it's easier to experiment and get treatments here and people dont get sectioned for having ME
 

Jennifer J

Senior Member
Messages
997
Location
Southern California
if you see my thread here http://forums.phoenixrising.me/inde...g-cause-of-my-cfs-anti-nmda-antibodies.47413/ you'll know why I have this opinion ,I found the right doctor at the right specialist center ,I was referring more to the fact it's easier to experiment and get treatments here and people dont get sectioned for having ME

Thanks, @Shawn. :)

@Zou Xiangyu, check out Shawn's thread: http://forums.phoenixrising.me/inde...g-cause-of-my-cfs-anti-nmda-antibodies.47413/
 

Jeckylberry

Senior Member
Messages
127
Location
Queensland, Australia
its all about self interest and medical bigotry. Probably called mum's care Munchausen's by proxy which justifies 'rescuing' the child. I'm glad at least she has certainty, albeit post mortem. It gives her fuel and courage to fight the good fight.