Strawberry
Senior Member
- Messages
- 2,109
- Location
- Seattle, WA USA
I don't remember posting this before, but if I have, sorry! A few months ago I did the tilt table test. Dr Kaufman said it proves orthostatic intolerance. I want to see if I can get proper testing and treatment locally. I have had people in the medical industry say they haven't heard it phrased "orthostatic intolerance", so I want to know what to tell my doctor about it.
What kind of doctor (and with what kind of knowledge) should he refer me to?
What words or phrases should I explain to him (and referred doctor) if "orthostatic intolerance" isn't familiar?
Also, for the record, here is my test results. What type of OI would you think this is? All my life my BP was 90/60 (and a "rabbit" heart rate), but in the last few years went high. I am now being treated with a calcium channel blocker - Amlodipine. It has lowered my BP a bit, but also reduced my heart palpitations that I have found out now are MCAS/histamine related.
And if it helps with what I have specifically, I was shaking pretty badly at 5 minutes, swaying a bit. By the time I hit 15 minutes, my feet had a popping sensation, and I was shaking uncontrollably. Almost like mild convulsions or body spasms. I was afraid to go on as I was about to collapse. I was worthless for a few days after the test. Mild exertion does make my heart pound hard and fast, but I don't know if it gets high enough for tachycardia.
As always, thanks in advance!
What kind of doctor (and with what kind of knowledge) should he refer me to?
What words or phrases should I explain to him (and referred doctor) if "orthostatic intolerance" isn't familiar?
Also, for the record, here is my test results. What type of OI would you think this is? All my life my BP was 90/60 (and a "rabbit" heart rate), but in the last few years went high. I am now being treated with a calcium channel blocker - Amlodipine. It has lowered my BP a bit, but also reduced my heart palpitations that I have found out now are MCAS/histamine related.
And if it helps with what I have specifically, I was shaking pretty badly at 5 minutes, swaying a bit. By the time I hit 15 minutes, my feet had a popping sensation, and I was shaking uncontrollably. Almost like mild convulsions or body spasms. I was afraid to go on as I was about to collapse. I was worthless for a few days after the test. Mild exertion does make my heart pound hard and fast, but I don't know if it gets high enough for tachycardia.
As always, thanks in advance!