aimossy
Senior Member
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Via Workwell Foundation:
Research & Latest News
Post-exertional Malaise Research Opportunity
Dr. Mark VanNess and I recently visited the National Institutes of Health (NIH) to present our findings on cardiopulmonary exercise testing (CPET) and the importance of the symptom of post-exertional malaise to the NIH ME/CFS Special Interest Group. It was an encouraging trip that resulted in Dr. Brian Walitt, lead investigator of the ME/CFS Intramural Study, extending an invitation to Workwell Foundation to help recruit patients for a focus group on post-exertional malaise. If you are a person diagnosed with ME/CFS and have post-exertional malaise, please consider enrolling in this study. Those of you who have undergone the 2 day CPET and have had an abnormal recovery response know how important it is to identify and characterize the symptom of post-exertional malaise. If you are willing to share your experience with post-exertional malaise, please contact Ms. Barbara Stussman at: Focus Group Recruitment letter. Together, let’s reach out to NIH and help them understand post-exertional malaise.
With kind regards,
Staci R. Stevens
http://www.workwellfoundation.org/research-and-latest-news/
Research & Latest News
Post-exertional Malaise Research Opportunity
Dr. Mark VanNess and I recently visited the National Institutes of Health (NIH) to present our findings on cardiopulmonary exercise testing (CPET) and the importance of the symptom of post-exertional malaise to the NIH ME/CFS Special Interest Group. It was an encouraging trip that resulted in Dr. Brian Walitt, lead investigator of the ME/CFS Intramural Study, extending an invitation to Workwell Foundation to help recruit patients for a focus group on post-exertional malaise. If you are a person diagnosed with ME/CFS and have post-exertional malaise, please consider enrolling in this study. Those of you who have undergone the 2 day CPET and have had an abnormal recovery response know how important it is to identify and characterize the symptom of post-exertional malaise. If you are willing to share your experience with post-exertional malaise, please contact Ms. Barbara Stussman at: Focus Group Recruitment letter. Together, let’s reach out to NIH and help them understand post-exertional malaise.
With kind regards,
Staci R. Stevens
http://www.workwellfoundation.org/research-and-latest-news/
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