• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Blog posts by Stephanie Land

Intending to reuse this one as and when she blogs about ME, hence the generic title.

Latest blog post about Ryan Prior/Jamison Hill/Whitney Dafoe/Millions Missing.

My friend Ryan takes 20 pills a day to stay well. I heard him tell this to crowds of attentive listeners several times over the weekend. “I give myself one shot a week,” he added, “and get an I.V. treatment once a month.” I watched him take the pills a few times. He carries them around in a large backpack, in one of those containers, separated out by the days of the week. The green one makes him grimace. I don’t ask what they are.

https://stepville.com/2016/09/29/advocacy-in-action-ryan-prior/