I've made multiple aborted attempts at trying to take Ketotifen. I'm currently tube fed because of very severe MCADs/MCS and EoE. Have no safe foods at all.
Has anyone experienced increased sensitivity initially when taking it? From what I've heard, when it's effective, most people get a fairly quick decrease in sensitivity to foods. My environmental sensitivity escalates quite rapidly when I start on it and I have to give up as it's already too severe for me to persist.
I've just today placed an order for compounded liquid ketotifen so I can try starting it a drop at a time.
Very sad and frustrated since I started on tube feeding a few weeks ago as I'm not tolerating the formula well either. Seems like there's a barrier every way I turn. :-(
Has anyone experienced increased sensitivity initially when taking it? From what I've heard, when it's effective, most people get a fairly quick decrease in sensitivity to foods. My environmental sensitivity escalates quite rapidly when I start on it and I have to give up as it's already too severe for me to persist.
I've just today placed an order for compounded liquid ketotifen so I can try starting it a drop at a time.
Very sad and frustrated since I started on tube feeding a few weeks ago as I'm not tolerating the formula well either. Seems like there's a barrier every way I turn. :-(