Press Release: Original Analyses Reveal Poor Results of £5M PACE Trial of ‘Exercise Therapy' for CFS

[Tom Kindlon]

#MEaction press release available to *journalists* from me:

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"Original Analyses Reveal Poor Results of £5 Million PACE Trial of ‘Exercise Therapy’ for Chronic Fatigue Syndrome"

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Journalists can email me for a copy: tom kindlon (all one word) @ gmail dot com.

Has quotes from (and contact details for):

Jonathan C.W. Edwards MD (Emeritus Professor of Medicine University College London);
Keith Geraghty PhD (Honorary Research Fellow in Primary Care Medicine University of Manchester);
Alem Matthees (Patient and requester of the PACE data under the Freedom of Information Act, Australia) (no contact details given);
Dr. David Tuller (University of California, Berkeley);
Simon McGrath (Patient and science-blogger);
Tom Kindlon (Information Officer, Irish ME/CFS Association)


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[Amused]

Tom - what happens to the released data now. Do you know what Alem Mattees plans to do with it, and how soon we will find out any results based on the original protocol?

 

[Tom Kindlon]

Tom - what happens to the released data now. Do you know what Alem Mattees plans to do with it, and how soon we will find out any results based on the original protocol?

Don't know. I know did Alem put in a huge amount of work to win the case and will want to ensure that this effort does not go to waste.

 

[Tom Kindlon]

A group leader was sent a copy to send to journalists (after requesting it).
They just commented

Got it Tom, wow thank you, imagine that being published nationwide!

 

[AndyPR]

@JanetME any interest/use to you?

 

[trishrhymes]

Well done Tom. You're a star!

 

[Tom Kindlon]

Well done Tom. You're a star!

Thanks, though I should say I only had limited input into the press release.

 

[Tom Kindlon]

There is also a new press release today:

"Experts, Advocates and Patients Call Release of UK QMUL PACE Data 'A Game-changing Win for People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome'"



http://goo.gl/eniCVM

i.e.

http://www.meaction.net/2016/09/10/...c-encephalomyelitis-chronic-fatigue-syndrome/