• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Questions for Dr Montoya

Messages
5
With regards to the Naviaux study, it's suggested that antivirals should not been taken as long term use can inhibit mitochondria. They don't mention valtrex or valctye. What are his views on potential damage to the mitochondria from use of valtrex or valctye.

It would be awful to find that there is a potential cure in the future, but due to long term use of antivirals the mitochondria are irreparably damaged and so those that took them are left without a long term cure.
 

cman89

Senior Member
Messages
429
Location
Hayden, Idaho
With regards to the Naviaux study, it's suggested that antivirals should not been taken as long term use can inhibit mitochondria. They don't mention valtrex or valctye. What are his views on potential damage to the mitochondria from use of valtrex or valctye.

It would be awful to find that there is a potential cure in the future, but due to long term use of antivirals the mitochondria are irreparably damaged and so those that took them are left without a long term cure.
I wonder how much could be saved by concurrent use of mito support supplements? Whitney Defoe was even reported to have SNP's that are known to affect mito health, so supplementing would make sense anyway
 

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
I wonder how much could be saved by concurrent use of mito support supplements?
There has been a lot of discussion of this and, as I remember, most found that it either had no effect or a negative effect. For me, no effect. Perhaps that button has to be turned off first. Another question for Dr. M!
 

cman89

Senior Member
Messages
429
Location
Hayden, Idaho
There has been a lot of discussion of this and, as I remember, most found that it either had no effect or a negative effect. For me, no effect. Perhaps that button has to be turned off first. Another question for Dr. M!
No effect unless immune system or pathogens are lifted, but it may keep one in state, rather than inducing damage. Unless one is correcting an SNP, Methylation is really for detox and for keeping one in health. Its helped me, but mainly by keeping me in state...
 

halcyon

Senior Member
Messages
2,482
Yes, when is his and Lipkin´s pathogen study going to be published? He´s been promising exciting results for over a year!
I'd also like to know about this, as well as when he will publish the cytokine data he showed at the 2014 IACFS/ME conference.
 
Last edited:

eljefe19

Senior Member
Messages
483
This is great example of team work. Thank You!
No problem. I thought you guys would appreciate. Unfortunately I've just been told that Dr Montoya does not want to see me, he has decided to discharge me because I am "too aggressive."

I will do my best to get in there and see him so I can be a voice for this community. The unfortunate truth is I've been mistreated by Stanford from day 1 and this is simply more of the same. I have only ever been "aggressive" because I am aggressively pursuing recovery . They simply are fragile egos and it doesn't do us sick patients any good. I'm sorry guys.
 

Groggy Doggy

Guest
Messages
1,130
No problem. I thought you guys would appreciate. Unfortunately I've just been told that Dr Montoya does not want to see me, he has decided to discharge me because I am "too aggressive."

I will do my best to get in there and see him so I can be a voice for this community. The unfortunate truth is I've been mistreated by Stanford from day 1 and this is simply more of the same. I have only ever been "aggressive" because I am aggressively pursuing recovery . They simply are fragile egos and it doesn't do us sick patients any good. I'm sorry guys.
Oh no, so what options do you have now? Did he refer you to someone else?
 

eljefe19

Senior Member
Messages
483
Oh no, so what options do you have now? Did he refer you to someone else?
He wants to pass me off to someone else. I have suffered so much in the last year under his teams' care and the level of mistreatment has just been astounding. Somehow advocating for myself is too much for the fragile egos at Stanford. I think Dr Montoya has a lot of questions to answer about both his subpar treatments and the subpar treatment of his patients in general.
I'm literally about to get on a plane for this appt. how after one year of languishing with his stupid Valcyte treatment, inadequate in so many ways, four days before I'm finally supposed to see Dr Montoya he drops me like this.
 

Groggy Doggy

Guest
Messages
1,130
He wants to pass me off to someone else. I have suffered so much in the last year under his teams' care and the level of mistreatment has just been astounding. Somehow advocating for myself is too much for the fragile egos at Stanford. I think Dr Montoya has a lot of questions to answer about both his subpar treatments and the subpar treatment of his patients in general.
I'm literally about to get on a plane for this appt. how after one year of languishing with his stupid Valcyte treatment, inadequate in so many ways, four days before I'm finally supposed to see Dr Montoya he drops me like this.
So you will see a RN or PA at the clinic? I hope they don't refer you to The Integrative Medicine Center which in my sarcasm I refer to as the "Stanford Somotaform Center" since its ran by a psychiatrist who promotes psychobabble.
 

frog_in_the_fog

Test Subject
Messages
253
Location
California
Hmm...

Mindful Nourishment
Forgive for Good Workshop
Mindfulness Meditation Course
Love Yourself: For Everyone Else's Sake
Positive Psychology: The Pursuit of Happiness

Well if it floats your boat it is all good. I have been there done that...
 

Groggy Doggy

Guest
Messages
1,130
Hmm...

Mindful Nourishment
Forgive for Good Workshop
Mindfulness Meditation Course
Love Yourself: For Everyone Else's Sake
Positive Psychology: The Pursuit of Happiness

Well if it floats your boat it is all good. I have been there done that...
It won't cure ME though :(
 

frog_in_the_fog

Test Subject
Messages
253
Location
California
I remember going to an integrative medicine practitioner, and she would always do this prayer and put her hands on me before intravenously infusing me with some kind of magical concoction. I think it was just saline solution with vitamins, but I didn't actually know for sure. She did suggest I see a doctor for my hyperthyroid condition which was something that had put me in the hospital, but which was not actually disclosed to me by the hospital doctors at the time. So she did do something good for me even if she couldn't completely cure me.
 

Gingergrrl

Senior Member
Messages
16,171
He wants to pass me off to someone else. I have suffered so much in the last year under his teams' care and the level of mistreatment has just been astounding. Somehow advocating for myself is too much for the fragile egos at Stanford. I think Dr Montoya has a lot of questions to answer about both his subpar treatments and the subpar treatment of his patients in general. I'm literally about to get on a plane for this appt. how after one year of languishing with his stupid Valcyte treatment, inadequate in so many ways, four days before I'm finally supposed to see Dr Montoya he drops me like this.

I am so sorry to hear this and I was also mistreated by Stanford although at another clinic (and have never seen Dr. Montoya or been to the ME/CFS clinic just to be clear). I am shocked but yet also not shocked that he could just "drop" you right before you are about to get on a plane for your appt! This is actually completely unethical unless he gave you some solid, valid referrals who can provide treatment to you instead. Did he do this? Please keep us posted, and it was so kind of you to offer to ask him our questions, but am now thinking you need to focus on yourself and getting answers for your treatment moving forward.