Gingergrrl
Senior Member
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I did a Google site search on this and didn't find anything so was curious if anyone on PR has ever tried "Venofer" IV's to increase iron and ferritin. I need to research it further but it looks like it is being tested as a treatment for POTS in addition to ME/CFS. And just in general it could be a way to increase iron and ferritin which are always low for me but just "slightly" low and none of my doctors have ever been worried about it.
But for me "slightly low" might be affecting my shortness of breath and I wonder if this could be of any help? I suspect I would never tolerate iron pills although with the IV form, it is always possible that I could be allergic if it contains a preservative. I have just started to research this and have not brought it up with my doctors and no idea what they would say.
I am including a link to Cort's blog in which he talks about a patient who recovered after trying Venofer IV's (but of course everyone is different and I know this patient may be totally different than myself). Am posting the link and am curious if anyone has any thoughts on it. Thanks in advance!
http://www.healthrising.org/blog/2016/08/23/iron-man-young-persons-pots-mecfs-recovery-story-pt/
But for me "slightly low" might be affecting my shortness of breath and I wonder if this could be of any help? I suspect I would never tolerate iron pills although with the IV form, it is always possible that I could be allergic if it contains a preservative. I have just started to research this and have not brought it up with my doctors and no idea what they would say.
I am including a link to Cort's blog in which he talks about a patient who recovered after trying Venofer IV's (but of course everyone is different and I know this patient may be totally different than myself). Am posting the link and am curious if anyone has any thoughts on it. Thanks in advance!
http://www.healthrising.org/blog/2016/08/23/iron-man-young-persons-pots-mecfs-recovery-story-pt/