- Messages
- 21
- Location
- UK
Hello everyone, I hope you're keeping as well as possible amidst the madness and excitement at the moment!
I wanted to highlight this survey which will greatly help determine what the UK community would like to see in the protest demands for this September.
Question 2 of this survey refers to the NICE guidelines, and I'd like to quickly clarify a side note there.
We definitely feel that the NICE guidelines must and will, eventually, be reviewed with the abolition of GET and CBT. However, at this point in time, given the uncertainty around PACE and next year’s reassessment, and lack of clearer evidence-base for new treatments, our call for an immediate review may not be taken seriously.
With perseverance and a little time, hopefully we can address the issue of NICE in the very near future.
So for UK folks, please do take a couple of minutes to fill out the survey and have your say. I'll be setting up a call in a few weeks to open the discussion "face to face". It's incredibly important to me that these decisions are as community-wide as possible.
Thanks everyone.
https://www.surveymonkey.co.uk/r/6GXR3Q8
I wanted to highlight this survey which will greatly help determine what the UK community would like to see in the protest demands for this September.
Question 2 of this survey refers to the NICE guidelines, and I'd like to quickly clarify a side note there.
We definitely feel that the NICE guidelines must and will, eventually, be reviewed with the abolition of GET and CBT. However, at this point in time, given the uncertainty around PACE and next year’s reassessment, and lack of clearer evidence-base for new treatments, our call for an immediate review may not be taken seriously.
With perseverance and a little time, hopefully we can address the issue of NICE in the very near future.
So for UK folks, please do take a couple of minutes to fill out the survey and have your say. I'll be setting up a call in a few weeks to open the discussion "face to face". It's incredibly important to me that these decisions are as community-wide as possible.
Thanks everyone.
https://www.surveymonkey.co.uk/r/6GXR3Q8