There is no way I can respond to everyone right now, so sorry!
@caledonia I had my adrenals tested by an ND a few years ago, and he said they were fine. Dr K tested my cortisol, but I'm not sure about adrenals. My thyroid was suspected many MANY times over the years, and it has been checked over and over and passes with flying colors. Even Dr K said it was fine. So I am not sure if that website has to do with me? I will try to do some of the tests though.
To all:
Maybe it will help if I clarify a little. I MAY have ME/CFS, MAY have MCAS also, so maybe I never will feel better. I don't know. A year ago I had improved, even during an extremely stressful period (daughter leaving home and moving to Hawaii for school, brother passing away, etc) yet still was able to help my brother paint my house. I worked so hard I actually got the muscle pain from too much muscle use. The GOOD pain! The one we never get the luxury of experiencnig any more. Then moved in with the first "big move". I was feeling good, so decided to walk to the beach near me. Its near a 250 foot drop. The next day I couldn't walk downstairs to do laundry without having to sit on the couch from weakness, hard heart beat, and heavy breathing. The weekend after I finished moving out of my old house. The weekend after that I had to set up my daughters room so she had a place to sleep when she came home at midnight. I have never recovered from the crash. Salt/potassium water helped for a while, then stopped. Maybe I need to up the salt content?
All I do now is go to work. I can't clean, or cook.
Speaking of, time to leave work... I will try to respond to others tomorrow.